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Do other long haulers suffer with brain changes? Seen any improvement?
Post-COVID Recovery & COVID-19 | Last Active: 17 hours ago | Replies (180)Comment receiving replies
May I ask how you are today? I had Covid in January 2022 and been dealing with long covid problems since. This year 2024 my job of 25 yrs put me on Principal LTD, the mind confusion and black outs and memory, full body pain and numbness, tailbone and spine pain is severe, pins and needles and body temps off and on. Shoes are torcher. My hands and feet just burn. Having anxiety attacks while driving. My family thinks I’ve just went crazy and stepped away. Tackling this on my own is not easy. I can’t remember nothing. I can’t even navigate through the system for benefits. I’m just confused. I also will start doing something and go outside and forget or another room and start something else. Have you found anything that helps??
Replies to "May I ask how you are today? I had Covid in January 2022 and been dealing..."
Hi @armalone. Think so many here share your dismay and hope Im seeing your question well as my vision going instantaneously right now as one of my symptoms🙃 Others just dont get the effect on our brains and how its ever changing like can write here when well enough (laying in bed for perspective) and other times cant even balance a check book🙃So hope you can find small fulfilling things each day you are still able to do to prevent overexertion as a new start. May I suggest seeking a cognitive behavioral therapist to help you reframe every moment to manage all this each day and know you are still competent and just need to find new ways to maneuver and have laughable, heartfelt, fulfilling joyful moments. There is improvement and recovery for so many and wish you the quickest and best one possible!🌈
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I’m so sorry for all your challenges.
Mine are different, but I do understand. I have hearing and vision loss, and digestion messed up. I lost thirty pounds. I’m finally able to eat, but still struggle with extreme anxiety. I do not tolerate antidepressants, and that is what I have been offered. My husband has stuck by me for these three horrible years, but he is weary too.
I’m not sure what lies ahead.