Thank you Colleen for asking. I would say I am doing fine on day 3 after my second round of chemo therapy last Monday. I'm on edge a little as it is day 4 and that's when my downturn began last time. Maybe not so bad as my oncologist reduced the dose a little bit for treatment #2 instead of changing to carboplatin.
Because I journaled my physical side effects, medication times and amounts, and even my diet, and my mental emotions, I think I can better gauge the effects perhaps. The one morning after round #1 on day 4 I woke up weeping for unknown reasons, but it was probably due to the mood effects from the steroid dexamethasone. I won't worry now as much if that happens again, just will pull myself together over tea or coffee or water to start off the day. I know how how to flip the meds time wise for anti nausea and when to just plop down in a chair to recoup, and then to get up to do just a little laundry when I can. And boy, does that pile up quick. Yes, my husband helps by doing the folding, the hardest part for me, and I was so grateful since as he was never accustomed to that. He has allowed me to advise him on how to cook for the first time really. Before, he didn't have to so he stayed out of the kitchen. I'm the better cook. Now, he has to play lead cook and grocery shopper and is rather proud of his new skills I think. I get in and out of the grocery store but he takes a long time perusing all the kinds of foods he didn't ever see before and he rather enjoys that. Cancer is a game changer for sure.
Right, it has given me a sense of control and more focus. At first diagnose and what to do, I felt like my life was out of control and I could not focus, was mad at all the phone calls I had to make with appts. Travel and wait times had taken over my life and I wasn't getting my work done in my art studio. So mad. But now that this process is happening, I am seeing the light at the end of the tunnel and I am more relaxed even in spite of the nasty side effects. They will go away.
Thank you so much for your response and support. It feels good to have a place with others who understand. I will look up those related discussions you shared. Happy Thanksgiving to you and your family. —Burdyblue
Hello Burdyblue,
Sorry to hear about your chemo journey to date......what you have described in detail sums up what one should expect although everyone does respond differently (I'm guessing that journaling your ups and downs is actually therapeutic for you). Good that your oncologist listened to you and lowered your dosage accordingly. As you are probably learning, managing your supportive medications during your chemo treatments is an exercise in trying to figure out what works best for you without some of the unwarranted side effects (mental fog for one). Whether to undergo chemotherapy for Stage 2 lung cancer is a personal choice that should be made in consultation with your oncologist's feedback. Personally, I would have second guessed myself to this day if I hadn't taken that "insurance" step.
I apologize for assuming Tagrisso targeted therapy would be in your future after completion of your chemo treatments. Tagrisso is indicated for a certain type of cellular genetic mutation (ie. EGFR mutation) that leads to a common form of lung cancer predominately in non-smokers. You may want to confer with your oncologist to determine if the genetic marker testing they performed on your tumor indicated any specific genetic mutation as that would perhaps dictate which subsequent drug therapy might be beneficial in your case.
I had the pleasure of working in South Texas for a period of time and my lasting memory is how strong, resilient and supportive the people are there.......we can tell you have those same traits. Continued good luck and keep expanding your husband's domestic skills!