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Struggling with decision to move forward with Allogeneic Transplant
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 46 minutes ago | Replies (39)Comment receiving replies
Hi Deb,
And hello to everyone else on the board.
I'm recently diagnosed with MDS (with DDX41 mutation) and being advised that allogenic BMT sooner rather than later is the best course forward.
I'm scared. GvHD looms large in my thoughts and I'm conflicted about going through with the procedure.
I'm wondering where you are in your decision making process and whether or not you've gone through with BMT.
In general, I really appreciate all that have posted on this forum - your success stories give hope!
Thank you!
-G
Replies to "Hi Deb, And hello to everyone else on the board. I'm recently diagnosed with MDS (with..."
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11/19/24
Mayo response:
Hi @sherbs
It is so tough to decide to move forward when you feel well. You might consider a second opinion. For me It helped to have second opinion because that made It feel more secure moving forward to BMT.
I decided to move forward with transplant, and am at Day +14 . And they are talking about discharging me soon, which is about 5-6 days earlier that we expected; so all went well with my Transplant. For me, the worst part was a lingering nausea but it is getting better and they do have a lot medicines to try. Everyone is different in this side effects they may get. Try not to spend too much time reading about all the potential side effects- I put all my GVHD info in one spot and planned to get it if I had GVHD symptoms.
Even after I made the decision to move forward, I was still anxious and feeling like this couldn't be happening to me. But once I was admitted I felt much less scared and anxious. My point being that it's ok to move forward when you feel anxious about moving forward. It's a very difficult decision to make.
Good luck with your decision.
Deb