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MAC & Bronchiectasis | Last Active: 14 hours ago | Replies (10)
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Interesting.....electrocardiologist. I learn so much on this site. I had not heard of that specialist until your post,
I wish I had not been ignorant in 2021 when the pulmonologist just said to me "You just have large lungs" verses what would have been best...to "error on the side of caution" and do a CScan to be sure there is nothing else going on. My opinion, now knowing about all the factors involved with BE, I believe my lungs were inflammed and should have been checked out further with a CScan and I would have been diagnosed a year earlier.
My primary doctor finally in 8/22 with my weight loss ordered the CScan...result BE.
Barbara
Replies to "Interesting.....electrocardiologist. I learn so much on this site. I had not heard of that specialist until..."
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@blm1007blm1007
It is frustrating. I had some hyperinflation (on its own doesn’t necessarily mean a problem) on a lung xray two years before I was diagnosed with BE.
From hyperinflation, to infections not treated properly, to a diagnosis of BE, all within 2 years. I’m guessing the infections destroyed some cilia in my lungs.
Family doctor brushed off the hyperinflation yet I was experiencing symptoms- infections, sinusitis, coughing etc etc
Later I asked for a CT scan and was told it wasn’t necessary. There were no sputum tests done although I asked several times and there was absolutely no discussion about my lungs.
People are genuinely lucky to have a physician who is curious and interested in diagnosis.
We are often good advocates for family, but we need to be a strong advocate for ourselves too, as others have noted.