Connect
← Return to How much pain to tolerate
Discussion
Polymyalgia Rheumatica (PMR) | Last Active: 2 days ago | Replies (29)
Comment receiving replies
@karo89135 Have you already had the ultrasound for GCA? If not, ask for it.
Therese
Replies to "@karo89135 Have you already had the ultrasound for GCA? If not, ask for it. Therese"
Hi T, yes, pathetic a patient has to ask for recommendation for treatment. Not conclusive. Thank you for checking in! I have some unused Kevzara. Would love to give away my extra methotrexate and Kevsara. What a waste. My insurance won't cover it in 2025 but will Actemra. Confusing. A $ thing I’m sure. Allergic to it also.
Karo89135
Connect
Yes, Therese. I did. It was inconclusive for GCA but did find minimal Rt. Carotid occlusion of 50-60%. No bruit heard so 1 aspirin a day and Repath for LDL if we can find the latex free.
Also ordering Actemra when this bozo doctor changes it to NON auto inject. I really do believe I have GCA, headaches, TMJ’s very sore and limited, blurry vision, trouble focusing and feel off. Didn’t do well on methotrexate or Kevzara but one of them really helped the hand pain. It’s ridiculous to doctor myself like this, but I have no choice. Actually seeing the MD, not PA today. Not sure if it’s wise to not have the biopsy but in this town I think the Actemra will also help get off or decrease the prednisone.
Thank you for keeping in touch! It’s so helpful. Hope you are doing well?
Karo