New Updates on LC Diagnosis and Treatments!

Thank you for the link to the long scientific article that describes (a) potential, underlying viral-level causes of LC symptoms, and (b) treatments that could eliminate the various viruses involved.

This 2024 article is a long and comprehensive review of current research findings about Long Covid causes and treatments. It was a challenge to read, but one can focus on the symptoms of most interest to the reader.

My interest is: What causes Post-Exertional Malaise (PEM). Two different explanations have been proposed. The article discusses both.

This article cites 200+ source articles. I’ll be looking at the ones related to PEM research.

I'm so grateful to be receiving IVIG for my long Covid and the assortment of autoimmune diseases it has awakened and created. It has saved my life. I would probably be doing somewhat ok if my thyroid were not hyper.

I can’t quite catch the name of the drug Dr Patterson is taking about, I thought it was a statin but in the UK they all have similar word endings, nothing like he seems to be saying..what is it he suggests dosing in very low doses used for cholesterol etc normally?

Hi!
Yeah, he goes kinda fast. It is a statin but sub cholesterol lowering dosage. I believe he uses pravastatin.

I highly recommend reading the article link tho as it has all the current updates on research and causes along with treatments for each cause.

It’s known that long covid has many different profiles and causes that are different for each person, so there’s no ONE treatment for everyone.

The article discusses this in depth along with potential treatments and solutions. It’s a lot to digest all at once. I keep re reading it. But it’s a great resource to share with your doctors and for yourself as an advocate.

I think Dr Patterson’s focus is on those with the mutant macrophages that contain the spike protein, so getting his test or any test that can measure this marker in wbc would help direct treatment. But I highly recommend reading the article and going to the chart that shows the various pathways of long covid.

Dr Been does a great job of explaining the paper and once you read it, it helps to find what your particular brand of long covid might be.

Best wishes for everyone on their healing journeys! And I hope treatments and cures are found soon!! 🙏🏻🙏🏻

Do you mean the Paluso and Deeks paper linked higher up, can’t see anything by Patterson? I’m in the Uk…we don’t have the luxury of different types of LC…you are lucky, where I live, if LC or dysautonomia etc is recognised!

https://www.sciencedirect.com/science/article/pii/S0092867424008869

Thanks, yes it was the same paper, unfortunately bit too long for my ‘brain fog’, tho I found the bit on dysautonomia and postural / orthostatic hypotension… Sadly their treatments bare no resemblance to anything offered in my part of NW England!

To repl —

Thank you for the link to the scientific article. I’m reading it now. It’s packed with information, presented in concise, logical way. So, it’s a slow read, but written in a style that I can readily follow.

— friedrich

lol! I wouldn’t say here in the US it’s acknowledged as different types of LC. This paper isn’t considered “standard practice” by any stretch of the imagination! Research and clinical practice are years apart.

Majority of doctors dismiss you - they don’t know what to do for you. And finding ANY doctor who sees patients with LC here is like finding a diamond in the coal mine- rare and precious!

I’ve had to get SUPER creative in finding help. I read the research and then have finally found doctors who will assist me. But this has taken years of commitment and calling and seeing MANY doctors where 1/10 finally listens and is willing to “trial” based on research I give to them.

It’s really hard when brain fog makes finding words difficult and people treat you like you’re an idiot because you can barely communicate! I know, been there!

What’s helped me, especially brain fog has been a process of trialing various medications and herbs. I have gut, brain fog/dizziness, whole body swelling, heart palpitations, and breathing issues, muscle weakness, difficulty sleeping and controlling my body temperature.

Here’s what’s helped over the last year:
Paxlovid (took for 6 months, it cleared my brain fog and took the edge off of my other symptoms but also gave me mild medication induced liver damage-that reversed once stopped taking. Also only was truly effective for like 4 months)

Antibiotics helped a lot too! Helped my heart palpitations, fog, energy. I’ve tried Cipro/flagyl, and doxycycline. But the real game changer for me has been Rifaximin with Berberine, Cinnamon, Resveratrol, CoQ10
I’m going to be adding Adipogenin too.

I have EBV reactivation and gut dysbiosis so these herbals and antibiotics have really worked.

Here’s a great article to try for herbals if you can’t get meds:
https://www.mdpi.com/1999-4915/16/1/124
But this is mainly for EBV reactivation. However many are antiviral and antibiotic so can hold some promise for Covid too.

I have MCAS as well so I don’t tolerate many herbals and have had to pick through to find ones I’m not allergic to. (There are more potent ones than the ones I’m taking)

Best wishes!