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GCA prednisone vs. actemra infusion therapy
Polymyalgia Rheumatica (PMR) | Last Active: 2 days ago | Replies (48)Comment receiving replies
Thanks so much for sharing your experience and for providing the links. I am not familiar with the study and found the outcome very encouraging. I look forward to a complete review. Knowing that you did not have “immediate” success is also helpful. I think I was worried that it just wasn’t working but it might just be time to tweak this a bit.
I have found this group to be incredibly beneficial when we share a little bit of our personal experience. When you got better, you could have chosen to go back to your regular life but thanks for sticking around to offer up some experience when you have it. Wisdom during the journey is all any of us can hope for. Biggest Blessings! ❤️
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"When you got better, you could have chosen to go back to your regular life but thanks for sticking around to offer up some experience when you have it."
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I don't think going back to my regular life is possible at this stage. That would predate all the autoimmune problems that started when I was 32 years old and it has been a very long journey. I have learned a few things along the way but I don't ever claim to have an entitlement to know everything. I'm still in the process of learning and that will never stop.
I have learned from my own experience but that doesn't mean I can't learn something from the experience that someone else has. I guess that was what I liked the most about nursing. I could learn from the experience of patients without ever having the same experience!