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New Updates on LC Diagnosis and Treatments!

Post-COVID Recovery & COVID-19 | Last Active: 1 day ago | Replies (17)
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@wilsonanderson

Do you mean the Paluso and Deeks paper linked higher up, can’t see anything by Patterson? I’m in the Uk…we don’t have the luxury of different types of LC…you are lucky, where I live, if LC or dysautonomia etc is recognised!

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Replies to "Do you mean the Paluso and Deeks paper linked higher up, can’t see anything by Patterson?..."
repl | @repl | 3 days ago

lol! I wouldn’t say here in the US it’s acknowledged as different types of LC. This paper isn’t considered “standard practice” by any stretch of the imagination! Research and clinical practice are years apart.

Majority of doctors dismiss you - they don’t know what to do for you. And finding ANY doctor who sees patients with LC here is like finding a diamond in the coal mine- rare and precious!

I’ve had to get SUPER creative in finding help. I read the research and then have finally found doctors who will assist me. But this has taken years of commitment and calling and seeing MANY doctors where 1/10 finally listens and is willing to “trial” based on research I give to them.

It’s really hard when brain fog makes finding words difficult and people treat you like you’re an idiot because you can barely communicate! I know, been there!

What’s helped me, especially brain fog has been a process of trialing various medications and herbs. I have gut, brain fog/dizziness, whole body swelling, heart palpitations, and breathing issues, muscle weakness, difficulty sleeping and controlling my body temperature.

Here’s what’s helped over the last year:
Paxlovid (took for 6 months, it cleared my brain fog and took the edge off of my other symptoms but also gave me mild medication induced liver damage-that reversed once stopped taking. Also only was truly effective for like 4 months)

Antibiotics helped a lot too! Helped my heart palpitations, fog, energy. I’ve tried Cipro/flagyl, and doxycycline. But the real game changer for me has been Rifaximin with Berberine, Cinnamon, Resveratrol, CoQ10
I’m going to be adding Adipogenin too.

I have EBV reactivation and gut dysbiosis so these herbals and antibiotics have really worked.

Here’s a great article to try for herbals if you can’t get meds:
https://www.mdpi.com/1999-4915/16/1/124
But this is mainly for EBV reactivation. However many are antiviral and antibiotic so can hold some promise for Covid too.

I have MCAS as well so I don’t tolerate many herbals and have had to pick through to find ones I’m not allergic to. (There are more potent ones than the ones I’m taking)

Best wishes!

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