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Polymyalgia Rheumatica (PMR) | Last Active: 1 day ago | Replies (15)
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Replies to "The lower the dose of steroids the greater the percent of taper when you go down..."
"The symptoms of adrenal insufficiency are very easy to confuse with PMR pain. I'm not even sure they can be parsed by a medical professional. The body is complicated and complex"
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This was true in my case. How ironic that the treatment for adrenal insufficiency was the same as the treatment for PMR.
https://www.endocrine-abstracts.org/ea/0056/ea0056p44
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I needed to take a maintenance dose of prednisone until my cortisol level improved. Staying on a dose of 3 mg or less was a low enough dose to allow some room for my adrenals to regain some function. My endocrinologist said to remain on low dose Prednisone "for as long as it takes" and possibly for the rest of my life.
After I stayed on 3 mg or less of prednisone for 6 months, my cortisol level improved. My endocrinologist said it was fortunate that my cortisol level improved after long term Prednisone use.
After my cortisol level improved, I was allowed to discontinue prednisone. My endocrinologist said 3 mg was such a low dose that I could simply stop taking Prednisone without a taper. As long as PMR was controlled AND my cortisol level was good there was no need to take prednisone anymore. PMR was controlled by a steroid sparing medication that didn't suppress my adrenal function.
So often in medicine ... the treatment for one problem creates a new problem.