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Tested postive for Lynch Syndrome: Anyone have this?

Cancer | Last Active: 10 hours ago | Replies (44)

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@gdj

I'm in that boat too.

When I received the diagnosis (from genetic testing after cancer diagnosis) it came with recommendations for various screenings. Did you receive something similar?

And, I also received a letter to send to my kids and siblings because they were at risk for also being in our boat. Did you get such a letter?

My relatively new primary care doctor ordered all the screenings recommended, and I've been doing those the last year.

Do you have a primary care doctor you can follow up with?

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Replies to "I'm in that boat too. When I received the diagnosis (from genetic testing after cancer diagnosis)..."

I was notified to get tested because my aunt lost her battle with cancer at age 38, and all her kids are positive. Long and short is we have moved provinces and I do not have anyone overseeing my care or ordering the screenings.