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I have managed this PMR for the last 7 years. Up and down with prednisone. Today I am at 5mg trying to bring it down but frankly would not be surprised if I have to stay on 5 mg the rest of my life. At least I have absolutely no pain,,
Replies to "I have managed this PMR for the last 7 years. Up and down with prednisone. Today..."
I have had it for about 10 years and know that it will stay with me forever. I can manage pretty well on 5mg of Prednisone. What preoccupies me more is my Giant Cell Arteritis. That is actually life threatening but still all in all doing pretty well and at age 86 am happy to continue this way for a long while hopefully.
I can sympathise with you as I have had PRM for over eleven years now. I have tried and tried without success to get off prednisolone but as soon as I reach 3mg I flare up. I usually have to increase to 10mg to get relief. I can bring the dose down quickly until I reach 5mg, then very slowly. I tried the dead slow method but that too was unsuccessful. Like you, I'm wondering if I should resign myself to staying on 3mg permantely. My doctor disagrees with this and thinks I need to keep trying but she has no advise on how to do this. All very frustrating!
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Having no pain is a blessing. I am prepared to continue with some pain if I can get my prednisone at 2-3. Still working on that so we will see.