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How serious is a Chrons Disease diagnosis

Digestive Health | Last Active: Nov 21 8:26pm | Replies (20)
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@graceym1

It is definitely not a death sentence. I have uc. Which I’ve been hospitalized for in the past. I’ve been on steroids as well as a chemo like pill. I’m now on a very benign medication And have been in remission for years!! A good friend of mine has Crohns and was diagnosed about a year ago. She’s older than me. Closer to your age. And doing amazingly! Been in remission for over 6 months. She’s had to adjust her diet and take some meds. But already on much lower doses. And feeling great. And you will be tooo

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Replies to "It is definitely not a death sentence. I have uc. Which I’ve been hospitalized for in..."
Teresa, Volunteer Mentor | @hopeful33250 | Nov 19 9:47am

Hello @graceym1

I appreciate your post about your successful treatment with Crohn's. You mentioned, diet adjustment. Can you share
what type of diet adjustments you (or your friend) made that was helpful?

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cheryl46 | @cheryl46 | Nov 21 4:50pm

Unfortunately Crohn's and UC are vastly different. UC is only in the large bowel (colon) where Crohn's is in both the small and large bowels.
There are a lot of new immunosuppressants that have shown a significant improvement on symptoms and putting the disease into remission. The most important thing is to NOT let your doctor put you on any type of steroids for a long period of time. This can cause other complications.
I'm a retired GI nurse and my husband has UC, luckily his has burned out, but being diagnosed with Crohn's at this point in your life, I definitely recommend getting on the lowest immunosuppressant, like Skyrizi, that works great without severely compromising your immune system.
As far as diet, everyone is different. Most GI doctors will tell you to increase your fiber intake but for some people that's a trigger. The best recommendation I can offer is when you're symptomatic and experiencing discomfort then follow a clear liquid/bland diet. My husband's go too has always been egg noodles with a little butter 🤷‍♀️.

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