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How many doctors did you see to get to your NETS diagnosis?

Neuroendocrine Tumors (NETs) | Last Active: Nov 22 10:00am | Replies (20)
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@pamela1685

I'm sorry about all that you're going through. I hope you get a conclusive diagnosis soon.
I have autoimmune atrophic gastritis, so I produce no gastric acid. My most recent gastrin level was 565, but it has been as high as 800 in the past. (Normal level is under 115. )

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Replies to "I'm sorry about all that you're going through. I hope you get a conclusive diagnosis soon...."
cheryl46 | @cheryl46 | Nov 21 4:25pm

Have you had a 24hour urine done? When you have an upper endoscopy w/biopsy they have to do a special stain to R/O NET's.
Just stay vigilant and continue to be your own advocate.

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