Has anyone been able to have surgery for tumor in the tail?

Posted by vlny2018 @vlny2018, Jul 3 12:08pm

Has anyone been able to have surgery for tumor in the tail of the pancreas, stage 4, metastasized to the lymph nodes. My husband's oncologist says that sugery isn't an option ever for him. Just chemo every two weeks until folfirinox doesn't work or becomes too toxic. Then some other chemo mix, then … Is this true? This is so discouraging. If the tumors shrink, can't they do more? My husband has had the cancer go into his lymph nodes close to his kidney and the pressure was closing the tube connecting to his bladder, and now has a stint in place to keep kidney function, which it has done.

We have an appointment with the Mayo Clinic in Rochester in August. My husband just had his 4th treatment and will be having a PET scan the end of July. Other than this, he has been extremely healthy, no bad habits, exercises everyday, and eats clean. This is just a huge punch in the gut, as I'm sure is everyone's experience.

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@gamaryanne

I might only add that having things to look forward to and being engaged with people helps a lot. No matter what we are going through, there is always someone going through something equally painful. When we pray for others it reminds us of how much we have to be grateful for.
There is always some place that can use your volunteer time. Even if just writing cards to others! Pls check with your Church. I find that the more I am involved with something besides myself, the less I feel depressed. 💜

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Great advice Maryanne if the time and energy can be afforded! I used to tell my son to volunteer when he was a teenager and feeling blue; and it resulted in helping his mood and his college application!. I volunteered as a board member for the Bolsa Chica Land Trust during my first round of chemo with 5FU in 2023. I started losing my hair with my 2nd round of chemo, abraxane, early this year and I quit recently for reasons not related to cancer. Maybe there’s a light volunteer task in the church you belong to which wouldn’t require much commitment or energy like serving donuts after service on Sundays (our church does this) or even helping out with just buying a box of donuts to donate. I always told my children that helping others takes the focus off ourselves I think we are too focused on ourselves, sometimes.

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@joiedevivre

You remember your French 🙂 Thank you for taking the time to share. I am in this forum without my husband knowing - he is very private and few people know of his illness. This support helps me alot and I then feel I can be of more help to my husband. We are Christians and faith helps. The surgery set my husband back quite a bit - he lost 10kg and he was not a big man to start off with, he had infection, then the Folfirinox gave him really bad side effects and it was a fight to put back on the weight. Now, a year after surgery, he is eating much better and exercising. We live in hot climes but walks are a thing. The chemo is ongoing but if it keeps the cancer away I can live with that. I have to help him live with that.

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Yes, I do continue to watch French movies with subtitles and I find it a good way to help me keep practicing my French a tiny bit. The daughter of my BFF (she passed in 2022 of gall bladder cancer) lives in the south of France and has invited me many times, but alas I hate to fly. It was on my bucket list to work with a therapist over my fear of flying so that I could visit some of my friends in other states and countries; however it is the last thing on my bucket list!! That’s a beautiful phrase though - the joy of life.
You are a great guiding light for your husband! I really admire you for that and I completely understand where you are coming from. Just a few weeks ago drs thought my husband might have lung cancer, but it’s some lung disease (he’s currently in the hospital) that drs are still trying to figure out. He’s a bit on the negative side and doesn’t converse with his family much and he says he doesn’t want to worry them, however I converse daily through text with his brother - a retired dr to make sure they know what’s going on with him and as a double check on the treatment he’s getting. But yes, I can understand when a spouse needs our up lifting and I’m so glad you are on this forum. It provides a discourse for helping others as well as being able to learn from others.
It sounds like he’s headed in the right direction. The GA chemo works very well on liver lesions and I imagine on tumors as well. The smaller one (1 cm) disappeared and the larger one (about 1.5 or 1.7 cm) shrunk to 0.9 cm and I recently had that radiated with MRIdean, so I’m hoping I decimated it; I’ll find out by next appointment in early December. These don’t light up on my PET scan. Yes, the info we get between drs, surgeons, or radiologists can be conflicting. Just be aware you can always seek out the opinion of another oncologist as just a consultation visit without having to change your actual oncologist, if desired. So glad your husband is improving and I wish you both well on this journey!

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@mnewland99

Yes, I do continue to watch French movies with subtitles and I find it a good way to help me keep practicing my French a tiny bit. The daughter of my BFF (she passed in 2022 of gall bladder cancer) lives in the south of France and has invited me many times, but alas I hate to fly. It was on my bucket list to work with a therapist over my fear of flying so that I could visit some of my friends in other states and countries; however it is the last thing on my bucket list!! That’s a beautiful phrase though - the joy of life.
You are a great guiding light for your husband! I really admire you for that and I completely understand where you are coming from. Just a few weeks ago drs thought my husband might have lung cancer, but it’s some lung disease (he’s currently in the hospital) that drs are still trying to figure out. He’s a bit on the negative side and doesn’t converse with his family much and he says he doesn’t want to worry them, however I converse daily through text with his brother - a retired dr to make sure they know what’s going on with him and as a double check on the treatment he’s getting. But yes, I can understand when a spouse needs our up lifting and I’m so glad you are on this forum. It provides a discourse for helping others as well as being able to learn from others.
It sounds like he’s headed in the right direction. The GA chemo works very well on liver lesions and I imagine on tumors as well. The smaller one (1 cm) disappeared and the larger one (about 1.5 or 1.7 cm) shrunk to 0.9 cm and I recently had that radiated with MRIdean, so I’m hoping I decimated it; I’ll find out by next appointment in early December. These don’t light up on my PET scan. Yes, the info we get between drs, surgeons, or radiologists can be conflicting. Just be aware you can always seek out the opinion of another oncologist as just a consultation visit without having to change your actual oncologist, if desired. So glad your husband is improving and I wish you both well on this journey!

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Thank you very much. You sound like you have a whole lot on your plate and I thank you for finding the time to reply and encourage. I go to bed at night overwhelmed with fear and wake up the same - fear of losing my husband whom I have known since I was 15 (decades ago!). You should work on your fear of flying, if you can. I still fear flying but breathing exercises and some meds help. Flying lets me travel and see places.

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