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Primary Sclerosing Cholangitis (PSC)

Digestive Health | Last Active: Nov 21, 2024 | Replies (5)
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@cheryl46

Hi there, I am a GI nurse and have had many patients with PCS, my father in law included.
Have they been able to stage the progression of your disease?
If not done, I would think the next step would be a liver biopsy. I'm really surprised it took so long to diagnose. Normally it is one of a few tests checked for anyone with elevated liver enzymes, jaundice, or a history of Gout.
I will keep you in my prayers

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Replies to "Hi there, I am a GI nurse and have had many patients with PCS, my father..."
szelisk | @szelisk | Nov 20, 2024

Unfortunately, I am one of those with normal enzyme levels—no history of jaundice or gout. The fecal calprotien test was the only thing elevated.

Thank you! 🙂

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ariglo | @ariglo | Nov 21, 2024

Hi Cheryl
My daughter is 45 and diagnosed with PSC 6 years ago. They gave her 10 years to live. What am I to do with that?
Do you have any sources for me to follow? Has any one outlived predictions? I need some serious and honest answers as to what to expect. She lives in Phoenix. The doctors don't say much to her. She tries to eat right, etc. I just need to know what to expect. Thanks for any help you can give to me. Ari

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