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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: 4 hours ago | Replies (444)

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@archie2

Hi— don’t worry, all AA stories seem to be long I was Dx‘d in 1978. Truth is, AA is caused by trauma from surgery to the spinal cord, blood in the surgery wound, detritus from imaging fluid and aging. It can change, mutate and get worse. I find that the pump helps a lot of back pain from nerve damage, but not so much with AA. Thus the use of SCS as adjunct modality of treatment. I have Dilaudid in my pump _ has worked well for 18 years. States that limit the range of analgesics and want you to subsist on methadone and cognitive approach’s to pain control mean well, but don’t understand AA— they need to bring the best meds because AA is the worst.
Please keep in contact— hard to hurt my feelings or surprise me after 50 years of AA. Don’t give up! You have a good grasp on the disease— educate your local Pain Mgt physician— I’ve done it. Done give up, get active and become your own best advocate.

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Replies to "Hi— don’t worry, all AA stories seem to be long I was Dx‘d in 1978. Truth..."

have an appointment with a new pain specialist, for evaluation for the pain pump. Since i have hardware from C3 thru my sacrum, & a DRG stimulator as well. I need pain control for my arms, thoracic spine, down thru sacrum & severe neuropathic pain down both legs. Hope i don't get a strange look, from new doc, when i tell him the scope of my pain! May need oral drugs, as well. Since i have severe shoulder pain (need a new shoulder for 13 years) But i am not willing to have any more surgeries