I've had an interesting outcome for myself, and my only meningioma was diagnosed at the age of 39. This occurred on 10/22/2018. I ended up having the size of my hand and it situated itself over my left eye and went up through the left side. Upon arrival to the ER I was nauseated, vomiting, incredible headache, and I no longer could remember the names of anyone, except they were "good".

I am a mom to little one's as well (6 and 12 years old). I know I couldn't respond to verbal requests or my husband, for at least 12 hours' worth of time until the medication had kicked in and started working.

I ended up having surgery on 11/9/2018. It ended with increased brain swelling, needing transfusions,
a brain defect (about a 1/4 of my skull bone was removed from the left side) and it still left behind my meningioma despite my best effort to have it removed 🙁

When I went back to the OR a few weeks later for more surgery and to have my skull bone returned, I ended up having 3 additional surgeries for an infection over the next several months! It has been complicated recovery. I was finished with radiology that finished on 6/2019.

I went back to work, and I was followed with MRI's afterwards. Then I had another regrowth after about 2 years into the process. I felt my care wasn't a priority at this time frame, my original neurosurgeon had moved, and I took time off work to find solutions for myself.

I found there was a great report with the Mayo Clinic, so I went there. I received Lutathera in 2/2022 (Peptide receptor radionuclide therapy). I was completed for care in 8/2022, with some complications along the way.

I still moved forward with the Mayo Clinic team. I had a mini stroke (TIA/without any changes to myself), and then my brain tumor regrew for a third time! I ended up with requiring Proton therapy, until 3/6/23. I prayed for everyone around me and stayed on Avastin (infusion to prevent blood clots).

It can be overwhelming with all of the changes that has brought me forward to these 6 years and almost a 1 month later. Even with all of the medications I have been on (warfarin for blood clots, dexamethasone, Avastin, Keppra, etc.)

I think it was family and prayers that had led me through this life experience so far! My hope is you are alright! May you have the best wishes to you on your pathway with a brain tumor!