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Thoracic Aortic Aneurysm 5.1cm- worried

Aortic Aneurysms | Last Active: 1 day ago | Replies (6)

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@pamela78

This is so helpful! I learn more here than anywhere else. I just had a genetic panel done and, as you say, it was mostly about family history and connective tissue disease. I also have Rheumatoid Arthritis and didn't realize that could be a factor with aneurysms. I see my reumatologist this week and will talk to him about this. The full genome test is very expensive and the geneticist I saw didn't recommend it for me. I'm 78 with a 4.2 AAA. Your advice about coping strategies is excellent. I'm a total, bloody heathen as well and I miss wine, but I have a few very close friends with whom I can talk about everything and anything. That helps enormously. If you don't have friends like that, a therapist is a good idea. I've had two on separate occasions in my long life and found them very helpful for what I was going through at the time, You've got me wondering whether I should go to Mayo or Cleveland or somewhere. My cardiologist says he doesn't think that's necessary. I have yet to talk to a surgeon. I'd probably feel better if I did. I go back in a year for another CT scan. It's a lot to think about. I wish you the best as you navigate these choppy waters.

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Replies to "This is so helpful! I learn more here than anywhere else. I just had a genetic..."

I did get that ANA test. I ordered it myself through WalkInLabs.com. $48 for Quest lab with detailed pattern analysis. Holy poop...

I knew this might also be a factor, but really didn't want it to be: systemic sclerosis.

I've got like five nucleolar speckled patterns going on, and they all point to this. Rats.

It would be very nice to get a doctor in charge of all this. I am tired of being my own doctor.