Replies to I had the infusion once did nothing, HAD stop the IVIG for 2 weeks. My SMALL….

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Autoimmune Diseases | Last Active: 3 days ago | Replies (55)

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@penn

I had the infusion once did nothing, HAD stop the IVIG for 2 weeks. My SMALL. FIBER NEUROPOTHY is so much worse! Legs are so cold and burning! Neurologist started me on Gabapentin low does, no releaf!! I need a higher dose, will ask my dr., I'm so disgusted. Stuck in jail! Can't go out!

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Replies to "I had the infusion once did nothing, HAD stop the IVIG for 2 weeks. My SMALL...."

Becky, Volunteer Mentor | @becsbuddy | Nov 18 2:58pm

@penn
I sure know what it’s like being stuck at home! Not fun. Along with my autoimmune disease, i fell and “broke my neck.” I’ve been in a cervicular collar since Sept. With no driving
I’ve posted a link to the blood disorders where there are lots of people with ITP.
https://connect.mayoclinic.org/group/blood-.-cancers-disorders/. Lots to learn from them.
You stated that it feels like you're in prison. Can you not leave the house?

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