So, interesting. I came to share. I have long Covid or I get it about 9 months afterwards but after 3 bouts, I am wrecked. Even though I have been receiving IVIG for 8 mo. It has definitely saved my life. But on mental health. This crazy shit! So now, I know I have really bad fibromyalgia probably had it forever. I also have a hyper thyroid. I had a doctor in '22 insist on imaging and tapered me and then dropped me as a patient sending me back to my primary who I ended up replacing. I'm dying. I can't get anyone to listen to me. When my thyroid is at certain levels it triggers first me/CFS at .70 and then at .5 I get deathly ill. It's like pouring gasoline on these autoimmune diseases I have accumulated with long Covid (MCAS/HEDS..)
So, my thyroid became hyper again 3-4 weeks ago and it spurred a fibromyalgia flare up and I lost my mind! The anxiety over my broken brain took me straight to suicidal thoughts. They said I have neural inflammation. God help me 🙏 I'm so tired. I'm so sorry for everyone here.
They gave me 10 .25 Xanax it worked they refilled it (immunologist) but then my psychiatrist changed it to clonopine and it doesn't quite work but may keep me from becoming suicidal. So I ran out Friday and was losing my mind. I increased my thyroid medication and within 2 days improved. I also drank some big crazy beer concoction on Friday, just 1 (I don't drink) but omygosh I felt better and slept for 14 hours in peace. Not hungover or anything but just calm. Saturday I drank another when I started bugging out 24 hours later, same thing - I slept well. By Sunday, yesterday my thyroid has slowed down enough that the neural surge is in my body and not my brain. I don't know if they'll let me share this but, hang in there! And I love you!! I really do!