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Polymyalgia Rheumatica (PMR) | Last Active: 1 day ago | Replies (30)
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Replies to "hi. I just passed 7 years a few days ago. I am 78 now. I do..."
the rheumy I saw after a wait of fourteen months was also dismissive and same "your PMR can last only about two years at most so you must be having just aging issues". Was a highly active 74 year old with multiple hobbies and good diet and overall health before the PMR, now still the exhaustive fatigue and saddle/shoulder pain that has decreased but is ever-present, especially since being cut off pred "because it has too many side effects for you to continue even on a low maintenance dose".
I have had PMR for 7 years also. Up and down with prednisone. Tried ACTEMRA, horrible reaction. Back on 5mg prednisone. No pain, bones blood pressure sugar cholesterol all are fine. I no longer worry about staying on 5mg for the rest of my life. Am 86 and no pain.