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hi. I just passed 7 years a few days ago. I am 78 now. I do have osteoarthritis. hands feet knees shoulders but can function just fine. I Do adult tap and Heel drops. 50 a day and my bones have improved since initial prednisone caused damage..into osteoporosis.. now getting almost back to osteopenia. I take no other drugs. have good blood pressure, no diabetes, in range BMI, and good cholesterol (was high for 20 years but did not take statins. started doing ice baths )crazy I know) but cholesterol is normal now. I am on 2mg of prednisone. cannot get lower have tried and tried. lasted 2 months on 1.5 and finally gave up...too much pain and I believe that the exercise I did NOT do during that time. was more damaging than the 2 mg of prednisone while Doing exercise. (tap, 1x week, walk 3 miles a day, yoga 2x a week and light hand weights) My primary doc has been great. finally sent me to rheumy who was dismissive and said PMR only lasts 1 year and to get off prednisone that was when I dropped to 1.5 for 2 months in pain the whole time. ! good luck to us all!!!!
Replies to "hi. I just passed 7 years a few days ago. I am 78 now. I do..."
the rheumy I saw after a wait of fourteen months was also dismissive and same "your PMR can last only about two years at most so you must be having just aging issues". Was a highly active 74 year old with multiple hobbies and good diet and overall health before the PMR, now still the exhaustive fatigue and saddle/shoulder pain that has decreased but is ever-present, especially since being cut off pred "because it has too many side effects for you to continue even on a low maintenance dose".
My doctor told me I didn’t follow the normals of PMR and dismissed me in pain. I’m now on 7 mhpg of prednisone after 3 years, can’t stay on 6 more than a month, and some time I have to up it.
I’m sure it was cause from the first 2 Covid vaccines. Now I have breast cancer. I wouldn’t doubt it’s all due from the vaccines! Never had so many problems since those shots
Had to find another rhuemy
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I have had PMR for 7 years also. Up and down with prednisone. Tried ACTEMRA, horrible reaction. Back on 5mg prednisone. No pain, bones blood pressure sugar cholesterol all are fine. I no longer worry about staying on 5mg for the rest of my life. Am 86 and no pain.