Anyone progress from osteoporosis to osteopenia?

Posted by debbik @debbik, Nov 17 6:58am

Being new to this site, I’m enjoying all the info out there on your experiences with osteoporosis. Has anyone been diagnosed with osteoporosis and been able to gain bone density to the point of osteopenia, or better. I’m 65, have osteoporosis, and each bone density it gets worse. I’ll admit I need to step up with exercise, and make changes to diet. But would love to hear from anyone who has positive changes and specifically what you did to achieve them. Thank you!

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Thank you, windyshores!!! I like to think the proof is in the pudding…no signs of any fractures anywhere! After the x-ray tech finished my latest scan, I made sure she wrote down on the radiology paperwork to also account for my using strontium citrate. The scan was done at a major teaching hospital, so the radiologist must have been aware of the controversy surrounding strontium citrate (or am I assuming too much??!!). In any case, he did not make any additional notes regarding that on the report. Even if the strontium citrate overestimated my density by 10%, there was still substantial improvement. Well, that’s how I look at it! Glass half full! 🥃🙂

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@thisnthat

Thank you, windyshores!!! I like to think the proof is in the pudding…no signs of any fractures anywhere! After the x-ray tech finished my latest scan, I made sure she wrote down on the radiology paperwork to also account for my using strontium citrate. The scan was done at a major teaching hospital, so the radiologist must have been aware of the controversy surrounding strontium citrate (or am I assuming too much??!!). In any case, he did not make any additional notes regarding that on the report. Even if the strontium citrate overestimated my density by 10%, there was still substantial improvement. Well, that’s how I look at it! Glass half full! 🥃🙂

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Totally agree that you clearly progressed so congrats!

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@triciaot

If you’re looking for current outcomes for concurrent use of tamoxifen and biphosphonates I’m sure there is much available as tamoxifen has been used for over 40 years for women with breast cancer, many of whom have low bone density. Tamoxifen is prescribed for me for its anti-cancer properties whether or not it helps my bones. I hope I didn’t indicate that anyone would take tamoxifen for anti-absorptive purposes. A large percentage of women stop tamoxifen due to its side effects and increased risk of DVTs and uterine cancer.

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Thank you for your reply @triciaot . I understand your need in using tamoxifen as well as a bisphosphonate for the underlying medical conditions. At the same time im very curious about the dynamics of the two meds when used concurrently just from the angle of bone effects. I sure hope my reply did not give readers the wrong impression either. Personally I've considered using raloxifene (evista), another SERM, as an antiresorptive but ended up with using transdermal estradiol patches after discussing with my team of doctors. I'm very happy for you that reclast had worked very well. Wish you the very best!

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@thisnthat

Hi debbik,
Welcome to the club, I guess — though none of us really want to be here!
I have posted here before, but here goes anyway. Like you, my DEXA numbers were steadily declining. I chose to stick my head in the sand. With so many other health issues going on, it seemed to be the easiest thing to do. Then at age 68, I had a whopping 8.8% decrease in my Spinal T-score: -3.0! Full blown osteopenia in the Femoral neck: -2.2, and -2.0 in the Total hip. Wake up call!
My rheumatologist was pushing the medical model, the OP drugs. Kind of rolled his eyes when I said let me try a more natural way first. The side effects of the drugs frankly scared me, although if all else failed, I would have gone that route.
From that point on, I dedicated myself to turning this around. That meant structured exercise, 5 sessions a week: strength training, weight bearing, resistance bands, balance, coordination. (Mind you, nothing too heavy. I started with 1 pound weights. Still only up to 3 pounders!) Get out in the sunshine, walk. Increase protein intake. Eat the rainbow! Bioidentical hormones. Supplements galore, things like tocotrienols, collagen, strontium citrate (I know, controversial!), vitamin K2, etc., etc. I bought a low intensity vibration plate (yes, more controversy!), an investment in my health.
My most recent DEXA scan at age 70?
Spine: -0.3 “Normal”(!)
Average Femoral neck: -1.65 “Osteopenia”
Average Total hip: -1.35 “Osteopenia”
My doctor is no longer recommending I begin drug therapy!
So…..it is possible to tackle osteoporosis using alternative methods, and successfully increase your bone density. Not to say that is the only way, but hey, it sure is worth a try.

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Thanks for the lift. I needed that.

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@jbones

Thanks for the lift. I needed that.

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You’re welcome! We all need a lift — it’s a rough diagnosis! 🤗

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@debbik I went from osteoporosis to osteopenia several years ago. I had a nasal spray med Calcitoin.
Otherwise I never gave it a second thought…
I’ve had too many other, more urgent things to worry about.

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@thisnthat

Hi debbik,
Welcome to the club, I guess — though none of us really want to be here!
I have posted here before, but here goes anyway. Like you, my DEXA numbers were steadily declining. I chose to stick my head in the sand. With so many other health issues going on, it seemed to be the easiest thing to do. Then at age 68, I had a whopping 8.8% decrease in my Spinal T-score: -3.0! Full blown osteopenia in the Femoral neck: -2.2, and -2.0 in the Total hip. Wake up call!
My rheumatologist was pushing the medical model, the OP drugs. Kind of rolled his eyes when I said let me try a more natural way first. The side effects of the drugs frankly scared me, although if all else failed, I would have gone that route.
From that point on, I dedicated myself to turning this around. That meant structured exercise, 5 sessions a week: strength training, weight bearing, resistance bands, balance, coordination. (Mind you, nothing too heavy. I started with 1 pound weights. Still only up to 3 pounders!) Get out in the sunshine, walk. Increase protein intake. Eat the rainbow! Bioidentical hormones. Supplements galore, things like tocotrienols, collagen, strontium citrate (I know, controversial!), vitamin K2, etc., etc. I bought a low intensity vibration plate (yes, more controversy!), an investment in my health.
My most recent DEXA scan at age 70?
Spine: -0.3 “Normal”(!)
Average Femoral neck: -1.65 “Osteopenia”
Average Total hip: -1.35 “Osteopenia”
My doctor is no longer recommending I begin drug therapy!
So…..it is possible to tackle osteoporosis using alternative methods, and successfully increase your bone density. Not to say that is the only way, but hey, it sure is worth a try.

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Thank you so much thisnthat!! So encouraging. I still work full time which can get in the way, but I’m really trying to put together an exercise program and stick to it. You must be so happy with your results…. And you probably feel amazing… I need to step it up….i appreciate your words!!!

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I’ve been on alondronate 35 mg for three years, started weight lifting with a trainer a year ago. My spine is now at t score of zero. Very exciting. I attribute that more to the weight lifting than the medication. Just my guess. The endocrinologist said the weight lifting impacts the spine more than the hips. I do some pretty heavy lifting, at least I think it’s heavy 😂. Leg press up to 140 pounds! I turned 72 in October, and have always been active, and a runner until this last June.

The hips no improvement. They are both about at -2.5, I think. So will start Evenity soon, which is a bone builder. My sister did Evenity four years ago - no side effects at all, or with the reclast. My doc said none of his patients have had any side effects on Evenity. Hope that’s true for me.

Reading all the posts it’s interesting how different we all are, what works for some and not others.

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Thank you so much for sharing.. I recently started at a gym - I’m taking it slow because of a spine fracture a few years ago, but I am so encouraged about your improvement.. do you do any of the bands too? Or just weights? That is quite a bit you leg press!! I hope you are able to turn things around with your hips!

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@thisnthat

Hi debbik,
Welcome to the club, I guess — though none of us really want to be here!
I have posted here before, but here goes anyway. Like you, my DEXA numbers were steadily declining. I chose to stick my head in the sand. With so many other health issues going on, it seemed to be the easiest thing to do. Then at age 68, I had a whopping 8.8% decrease in my Spinal T-score: -3.0! Full blown osteopenia in the Femoral neck: -2.2, and -2.0 in the Total hip. Wake up call!
My rheumatologist was pushing the medical model, the OP drugs. Kind of rolled his eyes when I said let me try a more natural way first. The side effects of the drugs frankly scared me, although if all else failed, I would have gone that route.
From that point on, I dedicated myself to turning this around. That meant structured exercise, 5 sessions a week: strength training, weight bearing, resistance bands, balance, coordination. (Mind you, nothing too heavy. I started with 1 pound weights. Still only up to 3 pounders!) Get out in the sunshine, walk. Increase protein intake. Eat the rainbow! Bioidentical hormones. Supplements galore, things like tocotrienols, collagen, strontium citrate (I know, controversial!), vitamin K2, etc., etc. I bought a low intensity vibration plate (yes, more controversy!), an investment in my health.
My most recent DEXA scan at age 70?
Spine: -0.3 “Normal”(!)
Average Femoral neck: -1.65 “Osteopenia”
Average Total hip: -1.35 “Osteopenia”
My doctor is no longer recommending I begin drug therapy!
So…..it is possible to tackle osteoporosis using alternative methods, and successfully increase your bone density. Not to say that is the only way, but hey, it sure is worth a try.

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To thisnthat…. I’ve read your post three times now because it is so encouraging… I would love to learn more about what exercises, etc you’re doing. Maybe come along side you and learn as much as I can from you? I am so excited for you and what you have accomplished… it’s really what I want to achieve!!

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