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michcan1 avatar

Still confused about tapering

Polymyalgia Rheumatica (PMR) | Last Active: Mar 19 7:27pm | Replies (55)

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Profile picture for John, Volunteer Mentor @johnbishop

@michcan1, Do you keep a daily log with your dose and your level of pain when you first get up in the morning? It might help when you discuss a tapering schedule with your rheumatologist. You mentioned the PMR pain was about 95% symptom free at your 20mg starting dose. My rheumy had me go longer without tapering if my pain level was above what I considered too much (anything above a 2 on my pain scale of 0 to 10) or increase my dose to half of what my previous taper down was if it was greater than 2.

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Replies to "@michcan1, Do you keep a daily log with your dose and your level of pain when..."

@johnbishop ... If I waited to get to level 1 or less pain before I decreased my dose. I would never get off prednisone. The side effects of prednisone could be worse than PMR