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Have MAC with pseudemonas

MAC & Bronchiectasis | Last Active: Nov 30, 2024 | Replies (77)

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@happy2023

Even though I was sensitive to most antibiotics, Cipro did not get rid of my Pseudomonas. I took Levaquin for years each time I got a chest infection, most likely building up some resistance to it.
My PCP says the Pseudomonas colonizes in the lungs.
My pulmonologist at National Jewish laid out a plan for me to just keep the Pseudomonas knocked back. This plan is.....
morning and evening: 2 puffs Levalbuterol inhaler; followed by 7% nebulized saline; followed by Symbicort steroid inhaler (low dose 85 mcg/4.5 mcg) 2 puffs morning and 2 puffs evening.
I used a SmartVest for 4 months, sustained spinal compression fractures, now switching to a wrap, not vest, by Electromed with settings very low to begin with. Am going to try the Volara which nebulizes saline and oscillates in the same treatment.
I do pharmacologic airway clearance morning and evening (in the plan mentioned above).
Mid-day I do postural drainage airway clearance with supine exercises, deep breathing, huff coughing, manual percussion, Aerobika.
So far so good.....no exacerbations for 1 year now.
I have started wearing a mask every time I go out, and especially when I walk my dog, just to keep the dust and particles out of my lungs. I wear an N95 insert anytime I am around people, as at a grocery store or visits to the doctor.

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Replies to "Even though I was sensitive to most antibiotics, Cipro did not get rid of my Pseudomonas...."

Why was the Symbicort prescribed? Was that specific to Pseudo?? When you do try the Volara, would love to hear what you think. Thanks!

Hello - very interested to hear about the "N95 insert" - can you tell me where you get those and what the specific brand is? Also, I was given this device (see attachment) when I was in the hospital and I am not sure how to use it, and want to know if any of you use this on a regular basis and find it helpful. How is it helpful? Pamela