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Post-surgery symptoms

Polymyalgia Rheumatica (PMR) | Last Active: Nov 19 8:45am | Replies (12)

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@jojobarrk

My husband’s PMR started after contracting flu last February. We just figured he was slow to recover until severe side/back pain. We went to ER, they did scan and recommend he go for colonoscopy. Three days later he suddenly went blind. GCA diagnosed by opthalmologist and confirmed by biopsy. Too late to save vision. Hospitalized for a week on high dose of prednisone. Face and stomach now bloated. Now down to 12 mg prefer and on methotrexate but pain recurrence. I’m believe the flu triggered all this. My husband is very discouraged and says he hopes he goes to bed and doesn’t wake up. Tough times. Hope it gets better for you.

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Replies to "My husband’s PMR started after contracting flu last February. We just figured he was slow to..."

Hi Jojo, I am so sorry for your experience. It irritates me to no end the lack of research on this debilitating disease. Just because we are elderly, doesn't mean we don't matter.
Actemra an option? Colonoscopy?!! Someone dropped the ball? Best to you, keep fighting for options 💪.
Karo89135

There are no words to express my reaction to your story. I hope you and your husband find the strength and support to move forward to find joy in the future. My thought and prayers are with you. Please let us hear from y'all from time to time. This community is full of people who care deeply about each other.

I am so sorry for you and your husband’s devastating loss. I find great comfort and help in this forum, and hope you can too.

Your story is so important because we all need to know what to watch out for. I am praying for you both.