Radio Embolization Is My Next Step
Updating my journey with NETS as the headline indicates the August 21 bland embolization did not have the results we hoped. Dec 5 I will have a “mapping”procedure to see if I’m a candidate. Anyone with personal experience to share would be appreciated.
NOTE: My profile photo changed to my Halloween costume as a unicorn zebra. It reflects both my cancers of CLL & NETS! I hope it gives everyone a smile! 🦓❤️
Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.
I had y-90 treatment on both sides of my liver. Mapping was done and couple weeks later one side of liver was treated 30 days later other side was done. Mapping and procedure is similar not fun but tolerable. I unfortunately had a couple rare side effects from the second treatment. Extreme fatigue is the only problem I had from the first treatment. Second treatment i had 1 radioactive bead got loose and caused a radiation ulcer in my stomach on top of the ulcers I already have from functioning pnets (gastrinomas) recovery was rough! However treatment worked very well! I had it done September 2022 and the many tumors I have had some shrinkage or been stable since the treatment. Gastrin levels have been reduced from the 1800s to the 250-300 levels. I would do it again if needed
My husband had a 50% tumor burden in his liver. He had radioembolization done in 2010. It was hugely successful, killing nearly everything and keeping the rest stable for 6 years. He had alot of fatigue and some pain but it was tolerable. Best of luck to you!