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My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 2 days ago | Replies (590)Comment receiving replies
caregiverx2- 87 days down. Amazing, isn't it? Oh my. Every medication we come off of does feel good. Kidneys? I still have to drink over 100 oz. of water for my kidneys. My Dr. does not want me to kill my kidneys. The tremors I hope are a result of the tacro. That would be the best result.
The day i got home was the BEST day. My cat had passed away, but Home has made the nearly 4 months heaven. Build in exercise daily. Keep us posted.
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My husband is now at day +123. At day 100 they took him off the voriconazole and planned to taper the tacrolimus. But he broke out in a rash and was diagnosed with GVHD grade 2. He was put on steroids, back on the voriconazole, and they increased the tacrolimus. The rash has cleared up. His ANC dropped back down under 1 again so he had to go back on another medicine. So, instead of taking less drugs, he is taking more now. We see the doctor tomorrow to reassess his plan of care.