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Forteo vs. Tymlos: Which did you choose?

Osteoporosis & Bone Health | Last Active: 2 days ago | Replies (629)

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@kristinebelz

Hi @broken13 thanks for the info. Can I ask why you can’t get an updated dexa reading in your spine “because of” having the 13 fractures? Is dexa not able to read bc so much damage? I had 9 fractures (so not fun; I feel for you with 13!) and wanted to get another dexa - been about a year and a half, just on alendronate/fosamax and eating more calcium, and the long healing of the spine seems to have finished so I’m not in such pain but am curved over in spine. Permanently evidently. Not a good spine for walking or standing.

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Replies to "Hi @broken13 thanks for the info. Can I ask why you can’t get an updated dexa..."

@kristinebelz I have fractures at L1, L2 and L5 (as well as some thoracic ones). AS you know these fractures don't really "heal" but stabilize. I mean the structure of our spine changes permanently. Apparently compression fractures look denser than healthy vertebrae and make the DEXA look better.

My last DEXA, even though I told them which ones to exclude, they included L2 so I did some math to try to get a more accurate idea of progress!

The thing is, normally L1 through L5 will each be different and the overall score is a composite. I am not sure if DEXA's comparing only L3 and L4 (in my case) has validity but I'll take the 20% gain on Tymlos regardless!

They tried, and tell me it won't take a proper reading because of the fracture healing. Have you had a blood test to be sure you need calcium? My calcium levels are fine, so obviously not the cause of my osteoporosis . So sorry about your difficulty with mobility. I also have a curve now and lost 4 inches in height, but use a treadmill and cushioned shoes while doing so. Its so important to keep the body moving. I started in the pool after my breaks, and just walked back and forth until I built strength.