Any suggestions for the wife on how to support my husband?

Posted by anything4him @anything4him, Nov 15 12:09pm

Hi everyone, sadly we are now part of this group. I am looking for suggestions to help and support my husband through an upcoming prostatectomy. What did your significant other do -or you wish she would have done- to support you?

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@anything4him

Thank you- Wishing you all the best on Monday

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Thank you, I do think things will go well and I will pray everything goes well for anyone else suffering in any way.

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@anything4him

Thank you! Yes, I go to all appointments & take notes. Catheter training underway -watching videos- so will do my best on that.
Appreciate it!

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Four him , yes , cover his appointments and ask questions and take binder with you . collect everything in bider , images , dr visit notes , etc . Keep him organized . After operation I got a little fever ( infection) so I spent 6 days in Hospital , this was in 2021 . My wife came to hospital everyday . Brought some treats , talked with nurses ect .Lots of liquids are good . The IV drip in hospital should keep him very well hydrated and purge his system. ED may be an issue for a year or more . Lets hope nerves are spared and not aggravated . Pills help , and vacuum pump helps too . How old is he ? PSA and Gleason level ? any other health problems ? Be there for him mentally , he has quite an operation in front of him . You can do it im sure , you sound great and are ahead of the curve of events . James on Vancouver Island .

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Thanks James
Under 60, good health and weight, PSA just over 7 but aggressive Gleason score 8. Trying to save nerves but margin is tight on one side. Great doctor so we are hopeful. Yes the mental aspect has me concerned but I’ll be his advocate, nurse and jokester - what as needed

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Hope everyone had a wonderful Thanksgiving. I’m so thankful to have my husband in my life, and thankful to all of you that have taken time to reach out on this post. Unfortunately the PET scan shows iliac lymph nodes with severe elevated uptake. Waiting to hear from Mayo doctors. Hopefully he can take lymph nodes out during surgery but seems like the road to recovery just got longer. Have any of you had local lymph node involvement?

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My advice is to make sure you support yourself. You need time away from the cancer treadmill so that you can be strong when you have to be, so make an extra effort to have quality time by yourself and with friends.

I was in hospital for a few months after my diagnosis. and my spouse was wearing herself out spending most of her time either at work, at my bedside, or sleeping. Things went much better when we set aside Saturday mornings as "her time" when she wouldn't visit the hospital or even chat with me online (except in an emergency). Once the initial shock wore off, she also managed to reconnect with friends.

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@northoftheborder

My advice is to make sure you support yourself. You need time away from the cancer treadmill so that you can be strong when you have to be, so make an extra effort to have quality time by yourself and with friends.

I was in hospital for a few months after my diagnosis. and my spouse was wearing herself out spending most of her time either at work, at my bedside, or sleeping. Things went much better when we set aside Saturday mornings as "her time" when she wouldn't visit the hospital or even chat with me online (except in an emergency). Once the initial shock wore off, she also managed to reconnect with friends.

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Thank you for the advice and I will definitely keep that in mind. I feel guilty sneaking in a workout but I know I need to do that to keep physically and mentally strong during this journey.

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@anything4him

Thank you for the advice and I will definitely keep that in mind. I feel guilty sneaking in a workout but I know I need to do that to keep physically and mentally strong during this journey.

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If my own experience is any guide, he wants you to be happy and healthy, and seeing you that way will bring him joy at a difficult time.

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@northoftheborder

My advice is to make sure you support yourself. You need time away from the cancer treadmill so that you can be strong when you have to be, so make an extra effort to have quality time by yourself and with friends.

I was in hospital for a few months after my diagnosis. and my spouse was wearing herself out spending most of her time either at work, at my bedside, or sleeping. Things went much better when we set aside Saturday mornings as "her time" when she wouldn't visit the hospital or even chat with me online (except in an emergency). Once the initial shock wore off, she also managed to reconnect with friends.

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This. Absolutely this.
Make time for yourself.

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One thing I haven't noticed here is that you will become more intimately involved in his genital biology and hopefully you will be ok with it. My wife, in helping me during the catheterization, had never dealt with my penis in a non-sexual way and it was a new experience. The bruising, swelling and cleaning was all new and she helped considerably. And ever since she has seen me with penis clamps, external catheters and the like and has learned to adjust to this new reality. She's a keeper.

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@anything4him

Thank you for the advice and I will definitely keep that in mind. I feel guilty sneaking in a workout but I know I need to do that to keep physically and mentally strong during this journey.

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From the PET it seems like he will be placed on some form of ADT - androgen deprivation therapy - to slow down any loose cells from growing.
Radiation may also be considered - over the coming months after healing or on a wait and see basis. If so, it is VERY important for your husband to maintain a vigorous schedule of exercise and weight training. Can’t emphasize this enough!!
Since you mention that you yourself work out, encourage your husband to do the same - maybe even do it together. My wife and I can usually be found together - she on her elliptical, me on my treadmill. Or run or cycle outside together, whatever you desire.
At first, my wife often chided me for exercising so much - especially when I complained of fatigue and pushed myself to get through it….she thought she was helping me. But now she’s come to see the importance of maintaining muscle tone and weight when you are on ADT and she encourages me to exercise but not kill myself doing it.
Best to you and your man - you both got this!!

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