My Gleason score is 7 - 3+4. How long can I live without treatment?
My Gleason score is 7 - 3+4,. How long can I live without treatment? Since I decided not to get any treatment, because of horrible side effects, I was wondering, if someone who experienced the same condition, will share his experience with me.
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A little background. My PSA had been between 2.3 and 2.9 for five years up and down between those numbers. The only reason I got treated and even was concerned was my female endocrinologist had me do a full PSA test unlike my GP. The full test is a PSA, a PSA free, and a PSA free percentage and my % was low. My GP would not order a at home urine test that Medicare pays for even though I did all the research including giving him the phone number to call. I cut him off and no longer see him. I went to Mayo Phoenix and my MRI showed a 7mm lesion which is very small. I then had a transperineally 30 core fusion guided biopsy. I have a 120-gram prostate which is why so many cores. I had three positive cores all from the area of the lesion. Two were 4-3 and one 3-4. I had another lab examine my cores and they came back one 4-3 and two 3-4. If you do research the pathologists have changed the grading system a few years ago like grade inflation in college so I was very suspect of the results. My oncologist at my first meeting with him wanted to jab me with six months of Lupron with 28 radiation treatments. I am unique in that I have been in testosterone replacement since 2008 and when I don't apply my Androgel I go castrate in a week thanks to the test my endocrinologist and I had done in the past. He didn't believe me, and I didn't take the shot. As to the 28 radiation treatments I went to a Cyber Knife facility in Phoenix that does the SRBT 5 radiation treatments which is now just as effective as 28 or 40 because evidently prostate cancer cells can't handle the 5 heavy doses of Proton radiation. My testosterone was at 12 ng/dl for eight months and he tested me three times which is lower than the Lupron literature promises. When I told him I was going to go elsewhere for the five treatments he all of a sudden said "we can do 5" so I stayed at Mayo and did 5 SRBT Proton treatment, so far so good as my first three PSA's have been undetectable. I go Monday for a fourth PSA which is at 17 months post radiation. I am back on my testosterone gel and feeling fine. Had some minor urinary leakage 310 days after radiation that Kegels fixed. Any more questions just ask.
Paul, I'm no doc, but I have stage 4 metastatic prostate cancer which I've been fighting for a decade. Chemo was a little tough, but other treatments, surgery, etc. weren't bad. Your quality of life will be infinitely better with treatments rather than just withering away. There are many options available including standard protocol and experimental. It's 2024, not 1924.