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Polymyalgia Rheumatica (PMR) | Last Active: 1 hour ago | Replies (9)
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Replies to "Same story here, I developed PMR in Jan 2022 and was diagnosed in July 2022. I..."
Hi @dengland, Your description of your PMR journey sounds similar to mine but you were a few years younger when you started. I held a very high stress job and even though PMR has forced an earlier than anticipated retirement, my pain has not gone away. I have tried diet and exercise to no avail and I often pay for minimal jaunts in the pool with pain for several days. I have had 3 Actemra infusions and am praying that relief is coming soon. I am impressed that you have been able to taper your prednisone dose because I am still at 19 mg after 2.5 years. Down from 25 mg. My hip and thigh pain become so ridiculous and inflammatory markers go off the charts at lower numbers. Praying that your solution is coming and that mine will arrived with the next Actemra Infusion. Biggest blessings! ❤️