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Polymyalgia Rheumatica (PMR) | Last Active: Nov 22 10:47am | Replies (30)
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Replies to "@puppytlc Hi, I was diagnosed at 50 and am 54. My rheumatologist said I should only..."
I am tapering and down to 2 mg, thinking maybe I should go back up to 2.5 due to pain in neck and shoulders and occasionally thighs. However since I am actively mobile with tolerable pain treated with Tylenol during day and a long 8 hour dose to sleep, I am going to tough it out and see how I do as I go down to 1.5 in a few weeks. I really want to get off the steroids.
You do not know how great it is to read these words. And you have an outstanding doc. Not sure how he or she could tell it might only last that long but when I first realized I had it, I did see that it was self-limiting and could last as little as 1-2 yrs or longer. At any rate, hope it potent!!!!!
At 5 mg, you are hopefully not having too may steroid effects, if any.
I started this journey in Jan '24 in my thighs (inner, outer, hams, groin, even derriere!). It moved to my upper arms. Then the Baker's cysts developed. In the last 2-3 months, legs are much improved. My upper arms are better but still very limited range of motion and painful...I know my right rot cuff is torn but at last US not seriously so. My fear is that due to the inflammation, I could have worsened this condition. At any rate, I so hope it keeps improving. I'm back to working out but nowhere close to what I was into pre-PMR. Hope to get back there.
Again, thx for sharing your story and I hope mine is helpful, too. It really does help to try and be positive...sometimes tough, but I found when I was engaged in activities I enjoyed, even at its worst, I didn't even think about it.
Take care!