Hello Merrle,
I am responding to your message from my husband‘s hospital room at Princess Margaret Hospital in Toronto. In March, there were few options for him and his relapsed CLL. We opted to try a CAR T clinical trial. Some type of new product. We are on day 12. We had been told about numerous potential side effects, and we were ready for them. But, to date, there have been none. According to my husband’s oncologist, only a third of patients get CRS (the side effects discussed with us) and 10% have bad CRS. Certainly, my husband has had a few tiring days in the hospital, but that really is it. CAR T
is becoming more and more a standard practice of care and certainly worth looking into. My husband’s ward is filled with stem cell transplant patients and CAR T patients and by far the patients that have had CAR T are more “lively” afterwards. I hope this helps.
Nancy Simpson