Is anybody dealing with an angiosarcoma?

Posted by amyqueenof4 @amyqueenof4, Sep 4, 2022

Is anybody dealing with an angiosarcoma? My fiancé is 48 and was diagnosed in January. It has been in two different locations already.

Interested in more discussions like this? Go to the Sarcoma Support Group.

@hopeful33250

Hello @bigkevh20,

You asked about angiosarcoma specialists at the Mayo Clinic. Here is a link to the Mayo Clinic's website that will provide information about their specialists in this area,
--Angiosarcoma, Doctors, Departments
https://www.mayoclinic.org/diseases-conditions/angiosarcoma/doctors-departments/ddc-20350249
If you are interested in obtaining a consultation, here is a link with information about how to go about getting an appointment for a consultation,
http://mayocl.in/1mtmR63
I look forward to hearing from you again.

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Thank you!!

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@colleenyoung

@claryssa, there are a couple of other discussions specific to angiosarcoma of the breast that might interest you here:
- Just diagnosed with sarcoma in my breast
https://connect.mayoclinic.org/discussion/just-diagnose-with-sacorma-in-my-breast-what-can-i-use-or-be-used/
- Angiosarcoma of the breast caused by previous breast radiation
https://connect.mayoclinic.org/discussion/angiosarcoma-of-the-breast-caused-by-previous-breast-radiation/
Claryssa, what treatment option was decided upon?

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I am currently working on getting a second opinion. I just met with the radiation doctor who seemed to give me more insight than my oncologist. The options are mastectomy and/or radiation. My lump was small, over 1 cm. Before making a decision, I want to gather as much information as possible. I'm currently working on finding a doctor who has some experience with angiosarcomas that are not radiation induced.

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@claryssa

I am currently working on getting a second opinion. I just met with the radiation doctor who seemed to give me more insight than my oncologist. The options are mastectomy and/or radiation. My lump was small, over 1 cm. Before making a decision, I want to gather as much information as possible. I'm currently working on finding a doctor who has some experience with angiosarcomas that are not radiation induced.

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@claryssa, I'm not sure if you saw the post that @hopeful33250 made to @bigkevh20 about angiosarcoma specialists at Mayo Clinic. In case you didn't, here is more info about angiosarcoma Care at Mayo

--Angiosarcoma, Doctors, Departments
https://www.mayoclinic.org/diseases-conditions/angiosarcoma/doctors-departments/ddc-20350249
And the link if you would like to inquire about a second opinion at Mayo: http://mayocl.in/1mtmR63

Sounds like a team approach is what you're looking for.

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