Hi @saltis, I’m searching for words to write to you about your recent news about new spread found to bone mets to your skull (if I understood correctly). Everything I could say sounds like a predictable platitude. But words are all I have so I will find some.
I take great strength from your day by day, hour by hour attitude, and apply it to my life. A walk in the woods and spending time with family has been intense focus for me the past week as I spent time at the cabin with family. And I read 3 books. I hope you realize how your words inspire. Thank you.

How many grandchildren do you have?

How are you doing with Capecitabin? Are the side effects manageable?

Hi @colleenyoung,
Thank you for your mail. Sorry about confusion. I have this auto correction which try to change almost every word to Swedish. The result is always interesting, confusion or laughter... yes you guessed right I have mets on parts of my skull and in one lung. It was expected or at least I thought it was expected. I mean nobody lives forever and now both my body and mind are at peace, a bit sad but I feel ok. They are going to start with Zoledronsyra drops at the beginning av September, every six weeks and afterwards every 6 or 7 months.
Honestly don’t know what to say about Capecitabin. The first 6 months was awaful, I had terrible rashes on my arms, back, under my feet, in mouth, on my skull, hands and bleeding & itching on my clitoris. They tried to give me lower dosage and rashes on my arms and back disappeared but still the skin on my arms shows the traces of those terrible rashes. I easily lost my balance and fell down. I gained liquid in my lungs and was operated twice. Now I take only 1 000 mg per day, without any pause in between. Less side effects but some of them are still there. Now that I have mets on my skull and probably in one of the lungs (I have already three tumors on my breast and chest), don”t know if I continue taking it or change to something else...I have not received the complete treatment plan, yet.
I have two wonderful grandchildren . A smart beautiful girl who becomes 4 in two weeks time and a boy who is almost three months old.. i feel really lucky and satisfied with my life. I have done my best to see the positive aspects of my life and do whatever I can for others. I have lived in war, gave birth while they were bombing our city, lost two unborn childtrn, was forced to seek asylum in Sweden which became our home. Lost a lot of loved ones but every problem, took me to new paths and let me discover the strenght in myself and the love and friendship around me. Have made wonderful friends and mostly have been happiness and laughter in my life. When down the nature helps me with long walks and time to accept my life.
Friends we have so much to enjoy and love to share with others. Share your love and warmth with others, please❤️