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DiscussionMy Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 4 hours ago | Replies (556)Comment receiving replies
Replies to "My husband is on day 87. Everything is going well except for some issues that may..."
Good morning! Well, now it’s day 88! I was off the computer yesterday so I didn’t see this! Wow, I can’t believe your husband is cruising up to date 100 pretty fast!
Aw, gosh, I know he’s been suffering with the hand tremors all along. That can be really common with the tacrolimus. Hopefully, as he tapers off that med, the tremors will dissipate. I looked back in my journal and once I began the taper, it didn’t take long before there was a noticeable relief. I was actually on low dose tacro for 2.5 years so I had a little tremor (not as disruptive) for that length of time.
I also had issues with my kidneys while on the tacro. From my understanding, it can reduce the blood flow through the kidneys which interferes with kidney function. After stopping the tacro that totally reversed itself too. It’s an important life saver med for us in early months of BMT, but obviously not without some pesky side effects. As @katgob mentioned, keeping up with a good volume of water daily can help keep the kidneys flushed.
Going home is the most amazing feeling. It was a 4.5 hour drive to home for us. The nearer we got to my city, the more the tears began to flow. Good thing I wasn’t driving! I was a blubbering mess by the time we hit our driveway. And then…my neighbors were all outside to greet us! Sniff sniff.
You get to click the Ruby Slippers 👠👠There’s no place like home! (I’m hoping you’ve seen the Wizard of Oz!) 😂
Thank you for the awesome update!