Welcome to Connect, @merrle As you’ve learned with your stem cell transplant, there can be some side effects to the treatment. With MM, the stem cell transplant is frequently done using the patient’s own cells in an Autologous transplant. Is that what you had? Were you able to use your own cells?
That does differ from a Allogenic transplant using cells of a donor. The recovery time for that process is quite lengthy and generally you’re not back to work after 10 weeks. So I’m expecting you had a autologous transplant.
CAR-T therapy uses your own cells. From the Mayo site, “ CAR-T cell therapy is an individualized cell-based technique that involves removing some of your own white blood cells, including T cells. To make CAR-T cells, the collected T cells are genetically treated in the lab to produce special receptors called chimeric antigen receptors, or CARs. These CARs allow the T cells to recognize an antigen (or marker) at the surface of cancer cells and activate T cells' ability to kill these cancer cells. The CAR-T cells are infused back into your body to identify and destroy certain cancers. This immunotherapy is one of the most promising areas of cancer treatment.”
I’m not sure we have members who have gone through both an auto transplant and CAR-T. But we do have a growing number CAR-T members in the forum who share there experiences in several discussions where you’ll meet @ntsimpson @denisej4032 @rogweigel @sunnyd @kirkwilliams2049 @barbarneson @burchfield and many other members who have gone through this life saving therapy.
Here are two links for you:
CAR-T Cell Therapy: Introduce yourself and connect with others: https://connect.mayoclinic.org/discussion/car-t-cell-therapy-introduce-yourself-and-connect-with-others/
CAR-T: Opportunity to Connect
https://connect.mayoclinic.org/discussion/opportunity-to-connect/
My suggestion is to speak to these members and not necessarily listen to anecdotal stories from people who have not gone through the procedure. I had a allogenic stem cell transplant and if I’d listened to the horror stories I wouldn’t be here! I’m 5+ years post transplant and at 70 years old, have a wonderfully normal, healthy life.
Are you near a larger university or teaching hospital where this will take place?
Thanks for your quick response. I had an auto. We live about an hour from a Blood Cancer Center, which is in Denver. a wonderful resource, but also am aware that they may have a bias toward length of survival versus quality of life. I feel like my general oncologist does a little bit better with quality of life issues and telling it like it really is. I understand your comment about horror stories, with the stem cell transplant. I just tried to collect as much info as I could, and plan for both the best outcome and the worst. So glad to hear things have gone well for you although you have had lots of bumps coming down!