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Severe Neuropathy in legs and feet and not a diabetic or alcoholic

Neuropathy | Last Active: Nov 21 11:18am | Replies (78)
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@lnorris232

Unfortunately, my B12 was so low for several years the nerve damage is not reversing. I take monthly b12 (cyanocobalamin 1000 MCG) injections to keep my numbers within a normal range. I lack intrinsic factor due to severe gastritis and cannot absorb B12 from foods or oral supplements.

I have tried and failed with gabapentin, lyrica, and cymbalta. I now take Tramadol for the pain. I am awaiting a trial at the end of this month of the Boston Scientifics SCS. I am hopeful for success.

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Replies to "Unfortunately, my B12 was so low for several years the nerve damage is not reversing. I..."
John, Volunteer Mentor | @johnbishop | Nov 16 8:43am

Have you tried any additional supplements to see if they might help with the nerve pain? The Foundation for Peripheral Neuropathy has a list of complementary and alternative treatments that include supplements that have shown to help some folks with neuropathy - https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf

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bb0753 | @bb0753 | Nov 17 8:25am

Did your other symptoms such as fatigue and weakness go away?

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pbrowni25 | @pbrowni25 | Nov 17 7:11pm

I would be interested in that trial if available in Pa.?

Thanks

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