← Return to Severe Neuropathy in legs and feet and not a diabetic or alcoholic

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@lnorris232

After living with severe neuropathy for 7 years, and having seen a wide variety of specialists there was one significant blood test that had not been done. I finally found a Neurologist who was determined to help me find out why I had the nerve pain as well as a lot of other symptoms, such as chronic fatigue, wide spread pain, general feeling unwell. The best I could describe was like getting the flu, without ever getting sick. It turned out my B12 was extremely deficient. I was diagnosed with Pernicious Anemia and it was later determined caused by autoimmune problems. I am unable to absorb B12 from food or oral vitamin supplements and now take regular B12 injections. It has taken 3 years to get my B12 numbers to a level the doctors are pleased with. Unfortunately long term B12 deficiency and pernicious anemia can cause permanent nerve damage. I would advise anyone like yourself suffering from neuropathic pain in legs and feet of unknown origin to ask you doctor(s) about B12 testing.

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Replies to "After living with severe neuropathy for 7 years, and having seen a wide variety of specialists..."

Hello @lnorris232, Welcome to Connect. It's good to hear that you have finally found out what was causing your symptoms. Thanks for sharing your experience and treatment. Here's some information from Mayo Clinic on the topic.

"Left untreated, a vitamin B-12 deficiency can lead to anemia, fatigue, muscle weakness, intestinal problems, nerve damage and mood disturbances. The recommended daily amount of vitamin B-12 for adults is 2.4 micrograms (mcg). Most people can get enough vitamin B-12 in the foods they eat."
-- Vitamin B-12 - Mayo Clinic: https://www.mayoclinic.org/drugs-supplements-vitamin-b12/art-20363663.

Now that your B12 numbers are better, has it lessened the nerve pain? Do you take any medications to help with nerve pain?