Replies to I was on prednisone for about a year, and found it to be wonderful as far…

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Autoimmune Diseases | Last Active: Nov 18 5:01pm | Replies (27)

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@carolinemartin656

I was on prednisone for about a year, and found it to be wonderful as far as pain reduction but it took a toll on my sleep.. have you ever tried Liw dose naltrexone for pain with RA? I’ve heard such great things about it.. maybe it could wean you off pred? Would your rheumatologist be open to talking about it?

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Replies to "I was on prednisone for about a year, and found it to be wonderful as far..."

catartist | @catartist | Nov 15 6:32pm

Thank you for suggesting an alternative to prednisone - I will ask RA Dr. but as much as we ALL wish I could get off pred.- especially now!, all Drs seem to think the physical addition is too hooked in - if I am LATE taking my 5mg of daily P, by late afternoon I will be in a fetal position with EVERYthing in awful pain- skin, bones,muscles, ligaments - everywhere! I have offered to go through a withdrawal medically managed program, But I’m told there isn’t any! I wasn’t told 30-40 yrs ago that it was SO addictive OR would slowly ‘eat’ my muscles if I lived long enough!( 78). It’s always worked best for RA pain- but I have never been without pain - unless I had big doses of Prednisone due to pneumonia etc. and then tapering down again was a big problem.
If there are others out there with this experience it would mean the world to me to know .
( hint - take full dose of P before noon and it shouldn’t effect sleep except at very high doses).

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