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Does anyone have a solution to help manage Reclast side effects?
Osteoporosis & Bone Health | Last Active: Dec 19, 2024 | Replies (331)Comment receiving replies
@windyshores Thamks so much for all the information you provided - and to everyone here. Certainly gives me comfort having a support group like this. I should have results by Monday and doctor follow-up soon after. Now I feel more knowledgeable and will be ready with some questions.
I truly do feel my doctor has been a partner in my journey. When my torn rotator cuff surgery was stopped because my bones “were like butter,” this doctor (endocrinologist) prescribed Tymlos (for 2 years) as well as discussed diet and supplements. After the 2 yrs, I had a successful Rotator cuff surgery and that’s when we moved over to Reclast. Started with 1/2 dose year 1; next year had full dose; due to have dose 3 in 2025. But, as mentioned, broken wrist with a black ice fall, and Dr suggested getting a “booster” 6 mos early. I thought a booster would be half dose, busy they gave me full. That was in August and here we are.
Stay tuned for test results and Thanks to all for listening.
Replies to "@windyshores Thamks so much for all the information you provided - and to everyone here. Certainly..."
Met with the Rheumatologist this week. After reviewing my history, bloodwork and ESR and CRP abnormal markers, she diagnosed me with Polymyalgia rheumatica. I am starting Prednisone 5 mg/2 in morning and 1 at night) for 3 mos. Follow/up in 3 wks.
She said that there are no tests that point to what may have caused this. I did share with her some of the stories on this site and some case studies connecting to Reclast. She said it could be a rare side effect, but can’t say
Hoping the Prednisone brings relief.
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@paula630 I am so glad you feel your doctor is a true partner and also that you did two years Tymlos and were able to have the rotator cuff surgery. Sorry about the wrist!
I think many on here will be interested in the fact that you had a half dose Reclast initially. I have posted that I had a low dose due to afib and kidney issues but those conditions meant that I didn't have to ask for low dose.
One of my endos told me they often do half dose, and the infusion nurse said the same thing. Yet on this forum there is discussion of how Reclast is "one size fits all" and to some, that means harmful side effects.
I have done Tymlos, Evenity and Reclast at less than full doses and I believe the solution for those of us who are sensitive is to work with our doctors to make adjustments and accommodations. I am, as I wrote before, so glad you have a doctor like that.
Good luck with your appointments and it is wonderful for all of us to have a support group- glad it helped!