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Meningioma: Anyone else? I'm frightened
Brain Tumor | Last Active: 2 hours ago | Replies (199)Comment receiving replies
I just found out I have Meningioma a couple weeks ago; I am terrified as well. I met with the Neurosurgeon who suggested that if I was that terrified to speak with Oncologist about radiation to see if they are able to shrink the tumor. Given the location of the Meningioma, it was not guaranteed for a total removal only enough to relieve pressure from the nerves. I started experiencing pressure, tingly in my face and stuffiness in my right nostril is the reason for the CT Scan. The thought of being in surgery for 8 hours to remove parts of a tumor is frightening for me.
I lot of you who have gone through this experience has given me hope.
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Have you thought of getting a second opinion? Did the doctor specifically say the surgery would be 8 hours? I was told by 3 doctors that my meningioma was in a tricky location, difficult to access, (and that is why 2 of those 3 doctors said surgery was not an option) but the 3rd doctor I consulted at UCSF , who did the surgery, did it in less than 4 hours. And my meningioma was totally resected, although the other two aforementined doctors who did not do the surgery also questioned if that were possible, that being the total removal of it. I've stated this before, I have had 2 mastectomies 18 years apart and the craniotomy was no worse.