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@cindy007

Yes, he is seeing a specialist and yes we are at a high elevation in Utah. He does have additional health issues that appear to aggravate the MAC infection, specifically lung scarring from scleroderma, which he lived with and seemed to be at bay for several years. It was not until the past year that the cough, heavy mucus with color and lack of oxygen became extreme. He is now also having upper GI issues and we don't know if this is part of the MAC problem or if it is an additional medical dilemma. He will be seeing gastro next week to find out if there are additional medical problems at play, but the extreme tightening in his upper gut causes breathing to be even more difficult. His current doctors are taking this all seriously and trying to help nail down all that is ailing him, but I found that forums with real people who are experiencing the same types of issues to be the best place to find answers and helpful solutions. Thank you to all who respond.

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Replies to "Yes, he is seeing a specialist and yes we are at a high elevation in Utah...."

So much to know, research and learn and do when we or our loved ones have health problems.
Many of us with BE (Bronchiectasis) have GI problems such as Acid Reflux or Hiatal Hernia.
Hiatal Hernia's can cause Acid Reflux and further problems. Glad a gastroenterologist is going to be seen.
Having multiple problems for us makes things so much more complicated and harder to know in what direction to go in...... so all we can do is "the best we can do" and it sounds like you both are doing that.
Barbara

I highly suggest you consider moving to a very low elevation. I dud and so have many others. Discuss this with your pulminologist.