1. < Osteoporosis & Bone Health

Forteo vs. Tymlos: Which did you choose?

Posted by suze317 @suze317, Oct 17, 2018

I have to make a decision on Forteo vs. Tymlos and am not sure what to choose. Forteo has been around a lot longer, but has to be refrigerated. Tymlos only around 1 1/2 years but is shelf stable and seems to have less side effects and less issues with calcium. Can anyone offer their perspective? Thank you!

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lhankins | @lhankins | 4 hours ago
In reply to @windyshores "@lhankins I just lost my long post! I did Tymlos for two years. DEXA showed dramatic..." + (show)
@windyshores

@lhankins I just lost my long post!

I did Tymlos for two years. DEXA showed dramatic gains at 18 months but bone markers showed it wasn't working at that point. Your doctor may be going by the fact that effectiveness often wanes for the last 6 months or so, and also may be trying to save a year of Tymlos for the future. Curious what they say if you ask!

Dr. Ben Leder in his You Tube video "Combined and Sequential Approaches to Osteoporosis" mentioned the substantial effectiveness of combining Forteo (like Tymlos) and Prolia (minute 11) and, more relevant to you, the substantial effectiveness of sequencing with Prolia after Forteo- ( minute 35 or so). https://www.youtube.com/watch?v=WXoz1NeUgg8

The problem as always is rebound after stopping. Leder says that bisphosphonates can "mitigate" this but the dose, frequency and type of bisphosphonate have not been determined (2022).

I hope you will keep this forum informed about your results. Your doctor sounds creative and as if they are up on research. I would ask about the track record in your doctor's practice of Reclast, for example, after one year of Prolia. People on this forum have cited Keith McCormick (author of "Great Bones") as now being in favor of Prolia for 1-3 shots if followed by a bisphosphonate. My own doctor won't use Prolia unless absolutely the only option but I am wondering if that will change.
ps Leder has another video up that is 6 months old that I just noticed and will watch that!

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@windyshores I will indeed catch up on the videos you cited as well. I definitely want to know what my rheumatologist’s track record is with this plan. Fairly overwhelmed with all of this but know that it’s ultimately up to me what I am willing to do. Thank you for all of your suggestions and support!

REPLY
njx58 | @njx58 | 1 hour ago
In reply to @lhankins "@njx58 I realize that there needs to be a follow-up to Tymlos and will definitely drill..." + (show)
@lhankins

@njx58 I realize that there needs to be a follow-up to Tymlos and will definitely drill my rheumatologist next month. When I was put on the ‘program’ with Tymlos I did not have nearly the information I have now after following this blog and doing more research on my own. I will post what happens after I go next month.

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It's unfortunate that we need forums like this one to get useful information, since it's hit-or-miss whether your doctor actually knows what he/she is talking about when it comes to osteoporosis treatment. That's why your approach is good: get educated, and then interrogate your doctor! 🙂

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