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New to Autoimmune Diseases, concerned blurry vision
Autoimmune Diseases | Last Active: 4 hours ago | Replies (24)Comment receiving replies
@Ini888 I wonder if the ice pick headaches on the same side as the blurry eye, could be a clue. I get blurry vision with migraines but that is episodic and it sounds like yours is more constant. Cataracts are an issue for me, but not you apparently.
Did the prednisone affect the blurriness? If so, could the biopsy have missed it because the prednisone had reduced inflammation?
You seem to have all the right doctors who are being quite thorough. Neurology and vascular neurology are both a good call. Not clear on what rheumatology found: is your ANA positive or was it sed rate or CRP that was positive?
There are all kinds of (brain-based and neck) connections between auditory, visual, facial, eye nerves that aren't fully understood. I am trying to get to the bottom of a painful connection between hearing/loud noise and facial nerve pain and numbness
I am not making progress. I do have a lupus diagnosis but that is not helping! I hope you have better luck!!
Replies to "@Ini888 I wonder if the ice pick headaches on the same side as the blurry eye,..."
Following up on ANA. You asked what rheumatologist found and in previous post I responded that sed rate and CRP were positive/high and that I had to check the ANA. So ANA was negative. Rheumatoid factor was slightly above normal.
Also, I forgot to put in my original post that I was diagnosed and treated for Lyme Disease about 29 years ago. Rheumatologist did do current Lyme IGG/IGM AB result 0.15 (normal less than 0.90).
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I also wonder if connection between ice pick headaches over my left eye in the past and my current blurry eyes being worse on my left eye. I’m beginning to wonder about a few other symptoms from the past that would come and go like years ago I had jaw pain, thought it was TMJ, saw a specialist at the time, I think an ENT, at the time was told to give jaw a rest by limiting extra chewy food for a bit and it improved. Never thought of it again until rheumatologist asked about jaw pain. Same goes for neck pain, have herniated discs in neck and have suffered on and off over the years with neck pain, stiffness, and headaches from it, usually triggered by lifting and carrying a lot, which I do at work when have events. Haven’t had neck pain for a while, but again never thought of it until rheumatologist asked about neck pain.
Not sure if I’m overthinking these things.
The prednisone has not changed the blurry vision. I had it right before I started to see the rheumatologist and started the prednisone and it continued through all levels of prednisone (60mg to 40mg to current 20 mg). I was on the 60mg of prednisone for about 10 days when I had the biopsy so there could be a chance the prednisone reduced the inflammation and affected the biopsy results.
Yes, sed rate and CRP were positive/high. Not sure about ANA, I have to check.
Sorry to hear you aren’t making progress, I hope you do. Thank you again for your feedback.