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Metastatic breast cancer: Anyone else?

Breast Cancer | Last Active: Mar 12 3:44pm | Replies (213)

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@wandering

Rae3: welcome to our group. I suppose not where you wanted to be after 16 years but ---. Anyway, I too am getting xgeva shots (every three months) and faslodex every month. My tumor markers are on the rise so my dr is looking into something else. Have an appointment next month so we should have a plan after that. Keep in touch and keep that good attitude.

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Replies to "Rae3: welcome to our group. I suppose not where you wanted to be after 16 years..."

Wandering...wondering if you got to Arizona this season???? How are you doing?? I have been on a timed release oxycontin 20 mg. for pain. Are you taking any pain meds???? My latest annual mammo in February indicated new calcifications in the original breast and recommended a biopsy or follow-up mammo in 3 months. My onc recommended waiting the 3 months. Not sure what that will mean.

I'm not taking any pain meds - two Advil a day and not sure I need them. I really feel quite well. I have lots of stress in my life right now not directly related to the MBC. My 96 year old mother needs to move first of April so I'll be heading out to help with that. The good news is I have rented an AirBnB place most of the time I'm gone so I can have a little down time while there. We are in Arizona til May. I chose a new oncologist this winter and am happy with him so far. My deal with my oncologist in Montana (summer place) is I will not change anything unless he approves. My new Arizona oncologist is OK with that so that's our deal. My tumor marker is heading the right direction so I doubt we will change anything unless that goes up. I was on Oxy at first (while in the hospital and for about two months). Didn't like how they made me feel and I could not drink wine while taking them so I got off of them. My oncologist told me it would only take a couple days to find out if that was a good move which it was. Best wishes - stay positive and spend your time with positive people not people who relate negative stories about people they know who had cancer and died - ugh.

HI I am new to the group. Diagnosed with MBC just shy of 5 years after Stage 2 Breast cancer. Was on Ibrance, loved it, but stopped working after a year, went on xeloda and stopped working after 13 months. Now waiting to have Biopsy on liver, and determine next step. ANy advice or reccomendations would be great

I was on Xgeva for 6 years.  Caused me to have osteonecrosis of the jaw (ONJ).  Very serious.  Will eventually need to have my jaw bolted with a metal plate.  ONJ is a major side effect of Xgeva so you might want to check on that.