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New to Autoimmune Diseases, concerned blurry vision
Autoimmune Diseases | Last Active: Nov 22 8:17pm | Replies (30)Comment receiving replies
@lni888
Welcome to Connect!
It sounds like you have had a good work up so far. You have also gotten good advice here.
I agree that it unfortunately can take time to get a proper diagnosis when dealing with autoimmune illnesses.
Try to keep a log of all your doctor visits and save copies of all testing done.
I also make a note on my calendar if something unusual happens.
Prednisone feels like a miracle drug sometimes- unfortunately it has side effects with longer use.
You should definitely have a baseline bone density test- especially if you are a woman.
You mentioned how exhausted and in pain you are after running events at work. It’s possible that you also can have fibromyalgia. Fibromyalgia often coexists with autoimmune illnesses and arthritis.
I especially hope that you get an answer to your blurry vision soon.
Replies to "@lni888 Welcome to Connect! It sounds like you have had a good work up so far...."
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Thank you for your reply. Yes, keeping a log of doctor visits has been helpful, especially when I go to new doctor and need to update them. Good idea to save copies of all testing, I will start to do that. Each doctor is on a different patient portal so having copies will help to have it in one place. I agree having a baseline bone density test will be good to have - and yes, I’m a woman.
I’ll check out fibromyalgia. Thank you.