Thanks for responding...I am tolerating the injections quite well for almost two years now. Only side affect seems to be about 5 fingernails have deteriorated on the tips. I started taking Solary brand biotin daily and using Hansen nail hardener and that helps strengthen the nails. I am thankful I can still do many things with the help of pain meds. I am being treated in southwest Florida and have yet to meet anyone with MBC. Nice to know this site is available.

Rae: My hair was thinning. In January I started shampooing with a shampoo that contains biotin (can be ordered off the internet). Side benefit: my nails are the thickest and longest they have ever been and my hair is thicker. Different.

What is the name of the product???

Not sure what you are asking.

Wondering what the name of the shampoo is???

Sorry about that. It's Avalon Organics therapy thickening shampoo. Contains biotin and b complex. I ordered it off the internet. Much cheaper than buying at a health food store. You have to be patient - it takes at least 3 months to see results - depends on how fast your hair grows.

I was rereading some posts and came acros this one from you. I contacted the Metastatic Breast Cancer Association in New York when I was looking for a new oncologist in Arizona. They got me in contact with several women in my area who were very helpful. You might give them a call and let them know where you are and that you are looking to find others with MBC. They are an all volunteer organization so you will probably need to leave a voicemail but they are very good about returning calls.

Thank you for your message. I live in Stockholm- Sweden & eventhough calling USA is absolut no problem, but I receive all my treatments & medication here. I just wanted to know and learn of other patients experiences & reaction. Thanks again.

Hi @wandering

Where are you in AZ? I'm glad n north Scottsdale.

I have MBC for 7 yrs now. I am unsure what to expect. The DR just says I can go on for years. I take the shots that were just mentioned.