Reclast side effects

Thank You for your responses! Right off I saw where you wrote that some of the pain we can experience could be from bone growth; that is exactly what my doctors nurse shared prior to meeting with my doctor! I am a 67 year male that was diagnosed years ago with Ankolosing Spondylitis; a form of arthritis; I’ve had this for 50 years; effecting my back and legs. I felt that right after the infusion like I had been injected with something that highlighted any area that was of inflammation, causing it to be worse. I’ve never had issues with my shoulders but do now. The pain gets worse when I am idle, like sitting around or during the night. Some times I wake 5-6 times a given night and am unable to move my right arm without assistance. As the day goes by the pain lessen some as long as I’m staying busy. Almost as if I can only think of one thing at a time and my focus is on whatever I am doing and not on the pain intensity. I observe the pain there but try to not let it consume my activities.
Honestly, life is manageable because being retired I could tell myself that it is okay to take a short nap if needed and not beat myself up for needing it because I did not sleep well the night prior; although, I have not resorted to taking a nap during my day! I am visiting a Physical Therapist; limited visits because VA is only allowing 15 visits, so I am trying to stretch the visits out and try working more on my own and using him to monitor my progress, which might assist with additional sessions if deemed necessary.
Most of all this is new to me and a bit hard to understand. I have only experienced broken bones once in my life working on a truck I slipped and fell on the fender and fractured 4/5 ribs. I do experience a lot of on, off pain in my lower back and my leg pain is and has been constant since I was around the age of 18.
I am gathering that treatment is supposed to outweigh the side effects or why would they be offering treatment in the first place, right? I wonder! I also realize that our “Brain” is a very powerful tool and one of its task are to help protect us and when something comes along in our system such as the Reclast it reacts and this could be the pain signals alerting us that a foreign object has entered into our body? So, do we continue with treatment and perhaps seek some form of psychological therapy to help retrain our brain that this pain is okay and “ hopefully” not debilitating? I do have a little time to think about this but often find myself not wanting to think about it and then all of a sudden, appointment day is here and thinking, okay, what am I going to do? I apologize for going on and on! I did read the article about the 82 year old that was getting around fine, had a Reclast infusion and is now in a wheelchair; doesn’t really support me seeking additional treatment!
Thank You All for your replies, hopefully my reply helps someone else who is new to this treatment and options!

@dannyanddebbie
I have been praying for you every morning since I first read your post. God is at work! I will continue to pray for total healing and good rest! Nancy

I have so many thoughts, but every time I post something I get shut down. I need to get a tooth pulled right now. There's a crack in it. I'm scheduled for Dec 2nd and I'm scared to death of osteonecrosis. I asked my Rheumatologist about it and he said the oral surgeon can "work around it." I told that to the oral surgeon and he looked at me like I was nuts. There is no "work around." There is no definitive answer. And they just keep pumping out the Reclast. The drug company gets rich and we get osteonecrosis.
Talk to as many doctors as you can, Sue. Try to find the best answer. I for one, and I'm sure everyone on this post will be praying for you...and for me, too, I hope. I even asked the oral surgeon if I could just leave it alone for awhile. Of course the answer to that was "no."

I have so many thoughts, but every time I post something I get shut down. I need to get a tooth pulled right now. There's a crack in it. I'm scheduled for Dec 2nd and I'm scared to death of osteonecrosis. I asked my Rheumatologist about it and he said the oral surgeon can "work around it." I told that to the oral surgeon and he looked at me like I was nuts. There is no "work around." There is no definitive answer. And they just keep pumping out the Reclast. The drug company gets rich and we get osteonecrosis.
Talk to as many doctors as you can, Sue. Try to find the best answer. I for one, and I'm sure everyone on this post will be praying for you...and for me, too, I hope. I even asked the oral surgeon if I could just leave it alone for awhile. Of course the answer to that was "no."

Thank you and I hope your dental appt. goes smoothly. Prayers for all.
Peace and every good.
Sue

I plan to order "Great Bones", today. I am very excited to read this book since I read the previous comments. I took Prolia for one year and had severe muscle and bone pain after the second injection. I then took Reclast for one year, because I was told that I could not just stop Prolia without taking Reclast to protect me from the side effects of stopping Prolia. It is now two years later and I had a Dexa scan and my Osteoporosis is worse by 20% from what it was before I took Prolia. I recently had five of my ribs fracture and I am at high risk for fracture without impact in my hip and spine. Apparently I must take another "bone medication", but my endocrinologist has said that the drug I take is up to me. I don't know what drug to take. I have sought a second opinion from the head of Endocrinology and he said he will do blood work after another month, to help decide what drug I should take. He wants to give my ribs more time to heal. I do not know what drug to take. I don't want to take any of them, but I also do not want to have any more fractures. Before I took Prolia I asked for the drug that had the least side effects. That did not turn out to be what I experienced. Any advice from my fellow friends with Osteoporosis? Thank you !!!!!

I plan to order "Great Bones", today. I am very excited to read this book since I read the previous comments. I took Prolia for one year and had severe muscle and bone pain after the second injection. I then took Reclast for one year, because I was told that I could not just stop Prolia without taking Reclast to protect me from the side effects of stopping Prolia. It is now two years later and I had a Dexa scan and my Osteoporosis is worse by 20% from what it was before I took Prolia. I recently had five of my ribs fracture and I am at high risk for fracture without impact in my hip and spine. Apparently I must take another "bone medication", but my endocrinologist has said that the drug I take is up to me. I don't know what drug to take. I have sought a second opinion from the head of Endocrinology and he said he will do blood work after another month, to help decide what drug I should take. He wants to give my ribs more time to heal. I do not know what drug to take. I don't want to take any of them, but I also do not want to have any more fractures. Before I took Prolia I asked for the drug that had the least side effects. That did not turn out to be what I experienced. Any advice from my fellow friends with Osteoporosis? Thank you !!!!!