Catheter questions - pre-OP and Post

Posted by gchdrake @gchdrake, 3 days ago

Hello,
I am new to this forum and have read many messages and replies. It seems everyone has a different experience and the conversations reflect that. I am wondering what the catheter experience is regarding post op and I see many leave it in for up to 2 weeks.
My Questions:
1) I thought the catheter had to be removed every day to avoid infection?
2) After 2 weeks are most people generally 'clear'?
3) For pants or pads, what is a geneeral rule most of you follow through the day or night?

I am sure I will have many more questions, my surgery is scheduled for Nov-22

Thank you in advance for any insights,
Gordon

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

My post from another thread:

I am 10 weeks post-op. The catheter was a pain in the butt (no, they didn't put it in the wrong place) 🙂

You will get some bladder spasms from time to time. Just be prepared for them and let them happen. Don't fight them, that only makes it worse.

You will bleed from around the tip of your penis a bit. Nothing alarming, but it will be there.

I tried the leg bag, but it was much more trouble than it was worth. I just carried the large bag around in a Target bag.

I also bought inexpensive sweatpants and cut a slit on the left-hand side to put the catheter tube and bag through. You can find them at Walmart or Amazon inexpensively. I used these for the week along with adult incontinence underpants. A side note: I ordered a pair of " pre-slit " sweatpants with velcro, which were a waste of money. Sent them back.

Patience is a big part of having the catheter in. Remember: it's "only" 7 days.

Lubricate the tip of the penis where the catheter is, and don't be afraid to put some in the penis itself. Get a fresh bottle of Vaseline or similar. I used a new tube of triple antibiotic from CVS for this, just in case any little critters wanted to get in there.

Most importantly, we are here for you so if you have any questions, fire away!

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Do your Kegels! I had a problem removing my small bag to my evening bag, so they told me I could leave the small one in the entire 9 days. It caused no problems. After removal, I had ZERO incontinence issues! Best wishes.

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Your experience with the catheter will depend on which procedure you have. I also had a lot of apprehension about the catheter. I had the transurethral ultrasound ablation (TULSA) in September, 2024 at Mayo in Jacksonville. When I awoke from anesthesia post procedure, I had a Foley catheter in place. I was discharged from the hospital with the instructions to return in one week for catheter removal. I had a day bag and a night bag which I used interchangeably. Daily shower with bags disconnected and catheter dangling. One week post op I returned to the clinic to have my catheter removed in the morning. I was told to drink lots of water and return in the afternoon for a bladder function test. During the day I was urinating small amounts but not vacating sufficient amounts of urine. An ultrasound revealed quite a bit of urine still in my bladder. They asked me if I wanted to return in a day or so to see if I was vacating any better. Since I didn't live in the immediate area I asked them to train me in clean intermittent catheterization (CIC). They did this and gave me a box of single use catheters and sent me home. (They also wrote me a prescription for one months worth of catheters.) They asked me to cath myself twice daily, once in the morning after first urination, and once in the evening after last urination and prior to bed, and to keep a log showing amounts remaining. They said anything below 100 ml was good. At first, I was seeing 40-80 ml, but recently I'm seeing 20-50 ml routinely. As an aside, I have been observing little flakes of tissue in the measuring container and was told this is normal for several months after TULSA. I have a video conference with a nurse practitioner in two days, and hopefully they'll suspend this catheter business. My biggest problem now with daily living is when I feel the need to pee, I need to pee right now. So, I have been wearing diapers/pads when I venture to town just in case I leak a bit. Self catheterization is easy to learn and by being the one inserting the tube, you can be as slow and deliberate as you need to avoid discomfort. The main thing is to follow the hand washing protocols to avoid giving yourself an infection.

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I am in the uk and had a robotic prostate removal 5 weeks ago. I had a catheter for the first 10 days post op. Initially the challenge was to check the levels of the bag, as you have no physical sensation of how full it is. I removed mine at home as my hospital gave me notes and guidance on how to do it. It was quite ok and painfree. Occasionally I had a bit of blood while having the catheter, mainly caused by tension on the tube between the catheter and the penis. Nothing serious. For nighttime check you have enough movement.
Post catheter it’s a new learning curve to know when to pee, there is a disconnect between bladder and brain , this improves with time but not in a linear fashion.
As nerves renew you may get confusing signals as to what is a pee alert and what is just a nerve tingle. When it comes to pads, get a selection . I use a small pad at night, it is normally dry now .
The main problem area is during the day. The transition from sitting to standing or from lying down to sitting or standing. The bladder can get confused by sudden movement. Before you change position , think first and gradually change position.

Everyone is different, I hope this helps a bit. Wishing you all the best for your op.

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